“I Wish No Child Died Like This”: Analyzing Responses from Parents of Babies Who Died of Complex Congenital Heart Disease in a Pediatric Intensive Care Unit
Bereaved parents' experiences underscore the need for improved communication strategies, greater parental involvement in care, and enhanced bereavement support. Integrating structured decision-making pathways early in the care trajectory may help mitigate parental distress and improve the quality of EoL experiences for children with CCHD.
Authors
- Luca Giacomelli (ORCID: https://orcid.org/0000-0002-3600-5941)
- Viviana Verzeletti
- Francesca Benedetti (ORCID: https://orcid.org/0000-0002-8701-2279)
- Caterina Agosto (ORCID: https://orcid.org/0000-0003-0584-8871)
- Simonetta Papa
Institutions
- University of Padua (IT)
Publication Details
- Journal
- Children
- Published
- 2025-02-10
- DOI
- https://doi.org/10.3390/children12020209
- Primary Topic
- Childhood Cancer Survivors' Quality of Life
- Type
- article
- Field-Weighted Citation Impact
- 0.00