How to build a framework to establish a patient research partner network in rheumatology research: a report of a 2-year implementation project
Our initiative outlines five essential steps for establishing PRP collaboration in rheumatology research, including translational research. This approach benefited both PRPs and researchers and might serve as a guide for other centres.
Authors
- Anna‐Maria Hoffmann‐Vold (ORCID: https://orcid.org/0000-0001-6467-7422)
- Stacey Grealis (ORCID: https://orcid.org/0000-0002-8344-9561)
- Adrian Ciurea (ORCID: https://orcid.org/0000-0002-7870-7132)
- Isabelle Steeb
- Rucsandra Dobrota (ORCID: https://orcid.org/0000-0001-9819-7574)
- Raphael Micheroli (ORCID: https://orcid.org/0000-0002-8918-7304)
- Fanny Klett
- Melpomeni Toitou (ORCID: https://orcid.org/0000-0002-4402-304X)
- Chantal Britt (ORCID: https://orcid.org/0009-0002-2149-9683)
- Maarten P. T. de Wit (ORCID: https://orcid.org/0000-0002-8428-6354)
- Cosimo Bruni (ORCID: https://orcid.org/0000-0003-2813-2083)
- Oliver Distler (ORCID: https://orcid.org/0000-0002-0546-8310)
- Stefan Dudli (ORCID: https://orcid.org/0000-0001-7351-713X)
- Tanja Maletic
- Muriel Elhaï (ORCID: https://orcid.org/0000-0001-8627-5758)
- Caroline Ospelt (ORCID: https://orcid.org/0000-0002-9151-4650)
- D. Diem
- K. Buerki (ORCID: https://orcid.org/0009-0009-1686-3875)
- Eva Camarillo‐Retamosa (ORCID: https://orcid.org/0000-0001-8004-8968)
- A. Eisenring
- Silke Ludwig
- Penelope Jane Timpert-Argust
Institutions
- University College Dublin (IE)
- University of Zurich (CH)
- University Hospital of Zurich (CH)
- The Geneva Association (CH)
- SCQM Foundation (CH)
Publication Details
- Journal
- RMD Open
- Published
- 2025-02-01
- DOI
- https://doi.org/10.1136/rmdopen-2024-005263
- Primary Topic
- Mental Health and Patient Involvement
- Type
- article
- Field-Weighted Citation Impact
- 0.00