OP-19 James Lind alliance priority setting: social science and humanities perspectives

<h3>Introduction</h3> In partnership with Marie Curie, the James Lind Alliance (JLA) is refreshing the priorities for palliative and end of life care research with input from patients, carers and clinicians. Previous exercises have identified questions useful for health services research; however dying is a social issue and social science and humanities approaches are vital to addressing these topics. <h3>Aims</h3> To identify interdisciplinary research topics, focusing on social sciences and humanities perspectives, that address issues raised in the JLA refresh activity. <h3>Methods</h3> Secondary analysis using the open-text survey data JLA Marie Curie collected. Initial codes generated by the project team were categorised by academics from the social sciences and humanities fields at a collaborative workshop, and then further refined to be shared and used by a range of audiences. <h3>Results</h3> Initial coding generated 37 codes. During the workshop, these were attributed to five themes: (1) awareness, communication, and planning; (2) power and transitions; (3) lived experience and support; (4) time and space; (5) inequality and inequities. We then produced a project report describing the themes and provided example research questions. Because of the interdisciplinarity of the outputs, it was not appropriate to place themes into a priority order. <h3>Conclusion</h3> It is possible to use qualitative data gathered in public engagement priority-setting exercises to identify potential areas to be researched using social science or humanities approaches. Drawing on these approaches is vital if we want to understand dying as a human, social, and cultural phenomenon and develop policy, services, and interventions. <h3>Impact</h3> The project report can be used by funders and researchers to identify areas to invest in and research, knowing they are important issues identified by people with life-limiting conditions, those that care for them, clinicians and the public.