PP-19 Financial insecurity, employment and end of life unpaid caregiving: an observational study

<h3>Introduction</h3> Unpaid carers play a vital role in supporting people towards the end of life. However, end of life caregiving has significant negative impacts including financial burden and challenges maintaining paid employment. In spite of this, there is a lack of evidence internationally on poverty amongst end of life carers and how this extends into bereavement. <h3>Aim</h3> To examine the impact of end of life unpaid caring on financial and employment outcomes. <h3>Methods</h3> The study was a secondary analysis of observational data from the UK Household Longitudinal Study (UKHLS). UKHLS collects health and social data annually from around 40,000 households in the UK. End of life unpaid carers were defined as participants &gt; 16 years, who identified as a carer for someone (&gt;16 years) in their household, where the care dependent died before the household’s next annual interview. Using a staggered difference in difference approach we explored the causal impact of caregiving on employment and poverty, including after the care recipients death. <h3>Results</h3> Using two measures of poverty, we found that the likelihood of unpaid carers falling into poverty significantly increased by between 7–19 percentage points after the death of the person being cared for. We also found a corresponding decrease in equivalised household income during this time. In addition, we found that unpaid carers were more likely to retire before reaching State Pension age, suggesting end of life carers are more likely to exit the labour market early. <h3>Conclusions</h3> Using representative population data, we found that end of life caring leads to increased odds of falling into poverty, and of taking early retirement. <h3>Impact</h3> The findings contribute to increased understanding of the needs of end of life family carers internationally and suggest a need for targeted interventions to address poverty and financial burden.

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Publication Details

Published
2025-02-01
DOI
https://doi.org/10.1136/spcare-2025-mcrc.37
Primary Topic
Intergenerational Family Dynamics and Caregiving
Type
article
Field-Weighted Citation Impact
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article

PP-19 Financial insecurity, employment and end of life unpaid caregiving: an observational study

Ed Webb, Clare Gardiner, Juliet Stone, Arthur Juet
Intergenerational Family Dynamics and Caregiving
article

PP-19 Financial insecurity, employment and end of life unpaid caregiving: an observational study

Ed Webb, Clare Gardiner, Juliet Stone, Arthur Juet
article en

Abstract

<h3>Introduction</h3> Unpaid carers play a vital role in supporting people towards the end of life. However, end of life caregiving has significant negative impacts including financial burden and challenges maintaining paid employment. In spite of this, there is a lack of evidence internationally on poverty amongst end of life carers and how this extends into bereavement. <h3>Aim</h3> To examine the impact of end of life unpaid caring on financial and employment outcomes. <h3>Methods</h3> The study was a secondary analysis of observational data from the UK Household Longitudinal Study (UKHLS). UKHLS collects health and social data annually from around 40,000 households in the UK. End of life unpaid carers were defined as participants &gt; 16 years, who identified as a carer for someone (&gt;16 years) in their household, where the care dependent died before the household’s next annual interview. Using a staggered difference in difference approach we explored the causal impact of caregiving on employment and poverty, including after the care recipients death. <h3>Results</h3> Using two measures of poverty, we found that the likelihood of unpaid carers falling into poverty significantly increased by between 7–19 percentage points after the death of the person being cared for. We also found a corresponding decrease in equivalised household income during this time. In addition, we found that unpaid carers were more likely to retire before reaching State Pension age, suggesting end of life carers are more likely to exit the labour market early. <h3>Conclusions</h3> Using representative population data, we found that end of life caring leads to increased odds of falling into poverty, and of taking early retirement. <h3>Impact</h3> The findings contribute to increased understanding of the needs of end of life family carers internationally and suggest a need for targeted interventions to address poverty and financial burden.

University of Leeds (GB), Loughborough University (GB), University of Sheffield (GB)
Openalex Percentile: Top 97%
Intergenerational Family Dynamics and Caregiving
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