PP-35 Exploring the experiences of people living with advanced liver disease and their carers attending a hospice for paracentesis services

<h3>Introduction</h3> People with advanced liver disease commonly experience ascites, a build-up of fluid in the abdomen, which can cause symptoms and may require removal by a procedure called ‘paracentesis’. There is a growing demand on NHS services with more people requiring paracentesis intervention.<sup>1</sup> Through local collaborative working we offer paracentesis in the hospice setting, allowing patients flexibility and timely access to this intervention. There is limited evidence around the experiences of patients receiving paracentesis intervention outside of a hospital setting. <h3>Aim</h3> To explore the experiences of people with advanced liver disease and their caregivers accessing paracentesis services in a hospice setting. <h3>Methods</h3> We will carry out semi-structured interviews with patients and caregivers attending paracentesis services within the hospice. We will structure interviews around three key themes identified in the literature: symptom control, personalised care and regular support. <h3>Results</h3> We will use the results of this study to better understand the positive and negative experiences of service users, which we will use to inform local service improvements, to improve access, efficiency and patient experience. We will create a blueprint to outline the process of developing, and implementing, a paracentesis service in another hospice, outlining the future research and quality improvement work which is required to test the efficacy, and effectiveness, of the service model. <h3>Conclusion</h3> The findings from this study will provide greater understanding of the experiences of people living with advanced liver disease, and their caregivers, who are receiving care and treatment under hospice services. <h3>Impact</h3> This work will create stronger collaborations between healthcare stakeholders in the North-West, involving the hospice, NHS trust and integrated care board, which will lead to improved patient care for people living with advanced liver disease. <h3>References</h3> Gillon S, Lowe E. The modern hospice and medical interventions. <i>BMJ Supportive &amp; Palliative Care</i> 2014;suppl. 1. 4. Fradsham S, Britton E, Caldwell H, <i>et al</i>. P-124 Liver let live: working collaboratively to improve access and care for patients with advanced liver disease. <i>BMJ Supportive &amp; Palliative Care</i> 2022;<b>12</b>:A55.

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Published
2025-02-01
DOI
https://doi.org/10.1136/spcare-2025-mcrc.52
Primary Topic
Palliative Care and End-of-Life Issues
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article
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article

PP-35 Exploring the experiences of people living with advanced liver disease and their carers attending a hospice for paracentesis services

Amara Callistus Nwosu, Sarah Stanley, A.H.K. Collison, Sarah Fradsham
Palliative Care and End-of-Life Issues
article

PP-35 Exploring the experiences of people living with advanced liver disease and their carers attending a hospice for paracentesis services

Amara Callistus Nwosu, Sarah Stanley, A.H.K. Collison, Sarah Fradsham
article en

Abstract

<h3>Introduction</h3> People with advanced liver disease commonly experience ascites, a build-up of fluid in the abdomen, which can cause symptoms and may require removal by a procedure called ‘paracentesis’. There is a growing demand on NHS services with more people requiring paracentesis intervention.<sup>1</sup> Through local collaborative working we offer paracentesis in the hospice setting, allowing patients flexibility and timely access to this intervention. There is limited evidence around the experiences of patients receiving paracentesis intervention outside of a hospital setting. <h3>Aim</h3> To explore the experiences of people with advanced liver disease and their caregivers accessing paracentesis services in a hospice setting. <h3>Methods</h3> We will carry out semi-structured interviews with patients and caregivers attending paracentesis services within the hospice. We will structure interviews around three key themes identified in the literature: symptom control, personalised care and regular support. <h3>Results</h3> We will use the results of this study to better understand the positive and negative experiences of service users, which we will use to inform local service improvements, to improve access, efficiency and patient experience. We will create a blueprint to outline the process of developing, and implementing, a paracentesis service in another hospice, outlining the future research and quality improvement work which is required to test the efficacy, and effectiveness, of the service model. <h3>Conclusion</h3> The findings from this study will provide greater understanding of the experiences of people living with advanced liver disease, and their caregivers, who are receiving care and treatment under hospice services. <h3>Impact</h3> This work will create stronger collaborations between healthcare stakeholders in the North-West, involving the hospice, NHS trust and integrated care board, which will lead to improved patient care for people living with advanced liver disease. <h3>References</h3> Gillon S, Lowe E. The modern hospice and medical interventions. <i>BMJ Supportive &amp; Palliative Care</i> 2014;suppl. 1. 4. Fradsham S, Britton E, Caldwell H, <i>et al</i>. P-124 Liver let live: working collaboratively to improve access and care for patients with advanced liver disease. <i>BMJ Supportive &amp; Palliative Care</i> 2022;<b>12</b>:A55.

University of Liverpool (GB), Aintree University Hospitals NHS Foundation Trust (GB), Marie Curie Hospice (GB), Liverpool John Moores University (GB), Lancaster University (GB)
Openalex Percentile: Top 97%
Palliative Care and End-of-Life Issues
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