PP-14 Developing effective service models for adult palliative and end-of-life care for people with a learning disability: DAPPLE

<h3>Introduction</h3> Challenges in providing Palliative and End-Of-Life Care (PEOLC) for people with learning disabilities include communication difficulties, lack of decision-making involvement, and limited staff experience. Inequalities need addressing to provide optimal PEOLC for this population. <h3>Aims</h3> To improve quality and accessibility of PEOLC for people with learning disabilities by producing guidance for health and social care services. <h3>Methods</h3> DAPPLE is a co-produced project, involving a diverse team of academics (including researchers with learning disabilities) and service providers. There are four Work Packages (WPs): WP1: Retrospective cohort analysis of the Clinical Practice Research Datalink, comparing people with and without learning disabilities. WP2: Rapid scoping review of the evidence on: (a) identifying need; (b) assessing and meeting need; (c) and coordination/delivery of services and interventions. WP3: Within four English localities: (a) Commissioner and service manager interviews and stakeholder conversations and events; (b) Ethnographic case studies of people with learning disabilities receiving PEOLC and retrospective case reviews using interviews and case file analysis; (c) Developing/testing methods for systematic identification of PEOLC need, using Experience-Based Co-Design. WP4: PPI activities, engagement, and outputs; working with self-advocates with learning disabilities to co-produce outputs. <h3>Results</h3> DAPPLE started in September 2024 and is a 3-year NIHR-funded project. We will share our project plans, including an accessible information video by three researchers with learning disabilities. <h3>Conclusion</h3> Early stakeholder engagement is of great importance and has added value in terms of impact and practice implementation. Employing four researchers with learning disabilities is groundbreaking within the palliative care and inclusive research field. They have a crucial role on the project and also help break down barriers in terms of engagement. <h3>Impact</h3> As part of WP4, we want to create awareness of the project and engage with a wide range of audiences throughout the project by sharing our project plans early on.