Lack of data collection in clinical trials prevents us from evaluating inclusion of people with disabilities
Disability is not just under recorded or underreported, it is ignored, in trials. As disability is not collected as a demographic characteristic, people with disabilities remain underserved in trials. Given 16% of the global population live with a disability, it is a threat to the generalizability of all trials and risks exacerbating health inequalities of people with a disability.
Authors
- Emma Lidington (ORCID: https://orcid.org/0000-0001-6176-8054)
- Frances Shiely (ORCID: https://orcid.org/0000-0003-0969-8321)
- Steve Cunningham (ORCID: https://orcid.org/0000-0001-7342-251X)
- Amy M. Russell (ORCID: https://orcid.org/0000-0002-8891-9059)
Institutions
- University of Leeds (GB)
- Queen Mary University of London (GB)
- University College Cork (IE)
Publication Details
- Journal
- Journal of Clinical Epidemiology
- Published
- 2025-02-07
- DOI
- https://doi.org/10.1016/j.jclinepi.2025.111715
- Citations
- 9
- Primary Topic
- Adolescent and Pediatric Healthcare
- Type
- article
- Field-Weighted Citation Impact
- 28.06
Funders
- Health Research Board