Insights into the Experiences of Family Caregivers in Intellectual Disability and Dementia

Research is based on interviews with prospective service users and their caregivers; this research lays the groundwork for developing a structure for designing supports and removing obstacles for people with intellectual impairment & dementia. It is essential to contain persons through intellectual impairments & dementia in accessibility inquiry because they have unique perspectives to offer. Research aims to use first-person and caregiver accounts to comprehend better the environment's impact on regular activity engagement among adults with intellectual impairments and dementia. Twelve family and professional caregivers attended five regular focus groups, while four persons with intellectual disability and dementia took part in two sessions of the fictitious group method. The results of sessions using the nominal group approach were studied through the lens of the environment, and the resulting transcripts were subjected to thematic analysis. Activity accessibility, caregiver help, social connections, duties, confidentiality, and wellness and health were highlighted as six essential themes by participants with intellectual disability and dementia. Caregiver involvement brought insight from more expansive ecosystem levels to their narrow, immediate-environment-focused viewpoints. These included dementia-friendly like medical facilities, healthcare facilities, group environments, conveyance, retains or retailers, individuals incorporated dementia-related knowledge, volunteer, and participation opportunities.

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Publication Details

Journal
Health Leadership and Quality of Life
Published
2024-12-30
DOI
https://doi.org/10.56294/hl2024.408
Primary Topic
Family and Disability Support Research
Type
article
Field-Weighted Citation Impact
0.00
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article

Insights into the Experiences of Family Caregivers in Intellectual Disability and Dementia

Ajit Kumar Lenka, Komal Patel, K. V. Jamuna, Amitabh Mishra et al.
Health Leadership and Quality of Life
Family and Disability Support Research
article

Insights into the Experiences of Family Caregivers in Intellectual Disability and Dementia

Ajit Kumar Lenka, Komal Patel, K. V. Jamuna, Amitabh Mishra, Tarang Bhatnagar, J Bikrant Kumar Prusty, Dhanaji Wagh
article en

Abstract

Research is based on interviews with prospective service users and their caregivers; this research lays the groundwork for developing a structure for designing supports and removing obstacles for people with intellectual impairment & dementia. It is essential to contain persons through intellectual impairments & dementia in accessibility inquiry because they have unique perspectives to offer. Research aims to use first-person and caregiver accounts to comprehend better the environment's impact on regular activity engagement among adults with intellectual impairments and dementia. Twelve family and professional caregivers attended five regular focus groups, while four persons with intellectual disability and dementia took part in two sessions of the fictitious group method. The results of sessions using the nominal group approach were studied through the lens of the environment, and the resulting transcripts were subjected to thematic analysis. Activity accessibility, caregiver help, social connections, duties, confidentiality, and wellness and health were highlighted as six essential themes by participants with intellectual disability and dementia. Caregiver involvement brought insight from more expansive ecosystem levels to their narrow, immediate-environment-focused viewpoints. These included dementia-friendly like medical facilities, healthcare facilities, group environments, conveyance, retains or retailers, individuals incorporated dementia-related knowledge, volunteer, and participation opportunities.

Health Leadership and Quality of LifeVol. 3
Jain University (IN), Siksha O Anusandhan University (IN), Noida International University (IN), Krishna Institute of Medical Sciences (IN), Parul University (IN), Institute of Medical Sciences and Sum Hospital (IN), Chitkara University (IN)
Openalex Percentile: Top 62%
Family and Disability Support Research
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