What are the lived healthcare experiences of patients with primary sclerosing cholangitis? A community-based qualitative interview study
This study complements the existing literature on the ongoing high burden of PSC, with added value from in-depth discussions with patients themselves. Priorities for further work have been identified, including the need for improved risk stratification tools to allow individualised management and prognostication, as well as improving access to knowledgeable care while maintaining a strong doctor-patient relationship.
Authors
- Sheila Greenfield (ORCID: https://orcid.org/0000-0002-8796-4114)
- Jayne Parry (ORCID: https://orcid.org/0000-0001-8144-0961)
- Katherine Arndtz (ORCID: https://orcid.org/0000-0002-5049-8893)
- Madeline Cameron (ORCID: https://orcid.org/0009-0000-1183-5386)
- Gideon M. Hirschfield
Institutions
- University Health Network (CA)
- Toronto General Hospital (CA)
- NIHR Birmingham Liver Biomedical Research Unit (GB)
- University of Birmingham (GB)
Publication Details
- Journal
- BMJ Open
- Published
- 2025-02-01
- DOI
- https://doi.org/10.1136/bmjopen-2023-082498
- Citations
- 4
- Primary Topic
- Liver Diseases and Immunity
- Type
- article
- Field-Weighted Citation Impact
- 5.29
Funders
- University Hospitals Birmingham NHS Foundation Trust
- National Institute for Health and Care Research
- University of Birmingham