Embracing Time: The (Dis)Comfort of Life After Allogeneic Stem Cell Transplants

Allogeneic Stem Cells Transplantation (ASCT) and, consequently, the chronicity associated with this life event has a growing prevalence and a significant impact on the life and daily life of each person who experiences it. The growing number of ASCT survivors highlights the need to reflect on the unique challenges they face throughout their recovery. To understand the meaning of the encounter with time in the lived experience of comfort for survivors of ASCT. Qualitative approach using van Manen's phenomenology of practice. We uncovered the phenomenon through phenomenological interviews, which integrated narratives and illustrative episodes that reflected the lived experiences of 20 survivors. Descriptions of lived experiences were collected from participants between July 2020 and May 2021. The following themes emerged from the ASCT survivor's lived experience of comfort related to time: giving time to live, time for what is important, time for the future, and living the time of day. This study reveals the importance of time for the survivor, the anguish of the time of discomfort, and creativity in the search to live the time of comfort provided by the ASCT.

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Publication Details

Journal
OBM Transplantation
Published
2025-02-06
DOI
https://doi.org/10.21926/obm.transplant.2501233
Primary Topic
Childhood Cancer Survivors' Quality of Life
Type
article
Field-Weighted Citation Impact
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article

Embracing Time: The (Dis)Comfort of Life After Allogeneic Stem Cell Transplants

Lúcia Bacalhau, Patrícia Cruz Pontífice Sousa Valente Ribeiro
OBM Transplantation
Childhood Cancer Survivors' Quality of Life
article

Embracing Time: The (Dis)Comfort of Life After Allogeneic Stem Cell Transplants

Lúcia Bacalhau, Patrícia Cruz Pontífice Sousa Valente Ribeiro
article en

Abstract

Allogeneic Stem Cells Transplantation (ASCT) and, consequently, the chronicity associated with this life event has a growing prevalence and a significant impact on the life and daily life of each person who experiences it. The growing number of ASCT survivors highlights the need to reflect on the unique challenges they face throughout their recovery. To understand the meaning of the encounter with time in the lived experience of comfort for survivors of ASCT. Qualitative approach using van Manen's phenomenology of practice. We uncovered the phenomenon through phenomenological interviews, which integrated narratives and illustrative episodes that reflected the lived experiences of 20 survivors. Descriptions of lived experiences were collected from participants between July 2020 and May 2021. The following themes emerged from the ASCT survivor's lived experience of comfort related to time: giving time to live, time for what is important, time for the future, and living the time of day. This study reveals the importance of time for the survivor, the anguish of the time of discomfort, and creativity in the search to live the time of comfort provided by the ASCT.

OBM TransplantationVol. 09(01)
Universidade Católica Portuguesa (PT)
Openalex Percentile: Top 97%
Childhood Cancer Survivors' Quality of Life
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