“By the Time We Knew …”: Poetic Analysis of End‐of‐Life Caregiving Experiences for Rapidly Progressive and Slower‐Duration Dementia Syndromes
End-of-life care for dementia should attend to and support axes of differential experience based on diagnosis and rarity, time since symptom onset (affecting preparation and conflict resolution), and participation in research studies.
Authors
- Nicole Boyd (ORCID: https://orcid.org/0000-0002-6118-0354)
- Joni Gilissen (ORCID: https://orcid.org/0000-0002-5388-495X)
- Jennifer E. James (ORCID: https://orcid.org/0000-0001-6240-3487)
- Michael D. Geschwind (ORCID: https://orcid.org/0000-0003-2861-3776)
- Krista L. Harrison (ORCID: https://orcid.org/0000-0001-5373-3011)
- Juliana Friend (ORCID: https://orcid.org/0000-0002-5314-8899)
- Christine S. Ritchie (ORCID: https://orcid.org/0000-0002-4881-9416)
- Alexander Kingsbury Smith (ORCID: https://orcid.org/0000-0002-9276-0861)
- Sarah B. Garrett (ORCID: https://orcid.org/0000-0002-3238-5692)
- Brianna Morgan (ORCID: https://orcid.org/0000-0001-6717-0520)
- Madina Halim
- David Looi
Institutions
- San Francisco VA Medical Center (US)
- Harvard University (US)
- University of California, San Francisco (US)
- University of Washington (US)
- Massachusetts General Hospital (US)
- University Memory and Aging Center (US)
- Sutter Roseville Medical Center (US)
- Institute on Aging (US)
- Karel de Grote Hogeschool (BE)
- Global Brain Health Institute (US)
- New York University (US)
Publication Details
- Journal
- Journal of the American Geriatrics Society
- Published
- 2025-02-05
- DOI
- https://doi.org/10.1111/jgs.19382
- Citations
- 1
- Primary Topic
- Prion Diseases and Protein Misfolding
- Type
- article
- Field-Weighted Citation Impact
- 0.81
Funders
- Global Brain Health Institute
- Alzheimer's Society
- National Institutes of Health
- Agency for Healthcare Research and Quality
- National Institute on Aging