Assessing the FAIRness of Metabolic Bariatric Surgery Registries: a Comparative Analysis of Data Dictionaries from the UK, Germany, France, Netherlands, Norway, and Sweden
Our study reveals significant inconsistencies in data structuring and a failure to comply with the FAIR Principles, which limit effective data analysis and comparison. This emphasizes the critical need for standardized data management practices. We recommend four next steps to improve the FAIRness of MBS registries: (1) annotate data elements using standardized terminology systems, (2) deposit registry-level metadata in a repository, (3) request globally unique and persistent identifiers for datasets, and (4) define access restrictions.
Authors
- François Pattou (ORCID: https://orcid.org/0000-0001-8388-3766)
- Jodok Matthias Fink (ORCID: https://orcid.org/0000-0002-6650-3490)
- Johan Ottosson (ORCID: https://orcid.org/0000-0002-9243-2390)
- Bart Torensma (ORCID: https://orcid.org/0000-0003-0274-9608)
- Ronald S. L. Liem (ORCID: https://orcid.org/0000-0002-0165-5995)
- Martijn G. Kersloot (ORCID: https://orcid.org/0000-0003-3357-3027)
- Mohamed Hany (ORCID: https://orcid.org/0000-0001-6650-8112)
- Andréa Lazzati (ORCID: https://orcid.org/0000-0002-3572-3132)
- Ahmed Ahmed (ORCID: https://orcid.org/0009-0005-1912-3857)
Institutions
- University of Freiburg (DE)
- Örebro University (SE)
- Leiden University Medical Center (NL)
- Institut Pasteur de Lille (FR)
- University Medical Center Freiburg (DE)
- Centre Hospitalier Universitaire de Lille (FR)
- Hôpital Avicenne (FR)
- Nederlandse Obesitas Kliniek (NL)
- Groene Hart Ziekenhuis (NL)
- Amsterdam University Medical Centers (NL)
- Imperial College London (GB)
- Alexandria University (EG)
- University of Amsterdam (NL)
Publication Details
- Journal
- Obesity Surgery
- Published
- 2025-02-04
- DOI
- https://doi.org/10.1007/s11695-025-07701-2
- Primary Topic
- Colorectal Cancer Screening and Detection
- Type
- article
- Field-Weighted Citation Impact
- 0.00