The Forgotten Voices: Enabling Children and Young People With Intellectual Disability to Express Their Views on Their Inpatient Hospital Experience
A parent advisory group, comprising parents/carers of young people with or without a learning disability, advised on all aspects of the wider study design and specifically on revisions to the measure reported in this manuscript. The parent advisory group met twice a year during the study with email contact between meetings for specific requests and study updates. Representatives of the advisory group also attended the study steering group.
Authors
- Kate Oulton (ORCID: https://orcid.org/0000-0002-5778-3849)
- Faith Gibson (ORCID: https://orcid.org/0000-0002-8125-4584)
- Charlotte Kenten (ORCID: https://orcid.org/0000-0001-7012-7347)
- Jo Wray (ORCID: https://orcid.org/0000-0002-4769-1211)
- Jessica Russell
Institutions
- Great Ormond Street Hospital for Children NHS Foundation Trust (GB)
- University of Surrey (GB)
- University College London (GB)
- Marie Curie (GB)
Publication Details
- Journal
- Health Expectations
- Published
- 2025-02-01
- DOI
- https://doi.org/10.1111/hex.70168
- Citations
- 5
- Primary Topic
- Healthcare Systems and Technology
- Type
- article
- Field-Weighted Citation Impact
- 13.82
Funders
- National Institute for Health and Care Research
- NIHR Great Ormond Street Hospital Biomedical Research Centre