Patient perspectives on acromegaly disease burden: insights from a community meeting
Acromegaly patients experience significant physical and psychological burdens despite biochemical control, highlighting the need for comprehensive and patient-centered care. In particular, the impacts on activities of daily living (ADLs) and heavy psychosocial and socioeconomic burdens are striking. We advocate for periodic screening for impacted ADLs, multidisciplinary teams to proactively address these symptoms, and call for further research on under-evaluated aspects of the disease.
Authors
- Jill Sisco (ORCID: https://orcid.org/0000-0002-5245-697X)
- Shruti Shah (ORCID: https://orcid.org/0000-0002-0715-3187)
- Kevin C.J. Yuen (ORCID: https://orcid.org/0000-0002-8169-2728)
- Nidhi Agrawal
- Vivien Bonert
- Kristen Dancel-Manning (ORCID: https://orcid.org/0000-0002-8656-1866)
- Wenyu Huang (ORCID: https://orcid.org/0000-0002-7329-1887)
- Chrystal Palaty
Institutions
- Northwestern University (US)
- Cedars-Sinai Medical Center (US)
- Barrow Neurological Institute (US)
- NYU Langone Health (US)
- New York University (US)
Publication Details
- Journal
- Frontiers in Endocrinology
- Published
- 2025-02-03
- DOI
- https://doi.org/10.3389/fendo.2025.1516131
- Citations
- 6
- Primary Topic
- Pituitary Gland Disorders and Treatments
- Type
- article
- Field-Weighted Citation Impact
- 7.77