Implementation of Cystic Fibrosis Responsibility, Independence, Self‐Care, Education Program Enhances Cystic Fibrosis Knowledge in Limited Resource Country: Results From a Randomized Controlled Trial
Our study demonstrated the CF S.O.B.E program's success in enhancing knowledge, disease management skills, and self-confidence among pwCF. While the modified CF S.O.B.E program may be suitable for resource-limited centers, the priority should be to implement the standard program due to its superior outcomes in self-confidence and disease management. This study lays the foundation for incorporating CF S.O.B.E as a standard practice and evaluating its long-term clinical impact.
Authors
- Merve Selçuk (ORCID: https://orcid.org/0000-0002-2146-3966)
- Yasemi̇n Gökdemi̇r (ORCID: https://orcid.org/0000-0002-0853-7932)
- Şeyda Karabulut (ORCID: https://orcid.org/0000-0002-4606-8946)
- Fazi̇let Karakoç (ORCID: https://orcid.org/0000-0001-8518-4715)
- Mürüvvet Yanaz (ORCID: https://orcid.org/0000-0002-1591-5735)
- Burcu Uzunoğlu (ORCID: https://orcid.org/0009-0004-3994-4399)
- Aynur Gulieva
- Özge Keniş-Coşkun (ORCID: https://orcid.org/0000-0002-3004-1992)
- Mine Kalyoncu (ORCID: https://orcid.org/0000-0002-4594-2822)
- Ela Erdem Eralp (ORCID: https://orcid.org/0000-0001-8829-3431)
- Pamela Mertz (ORCID: https://orcid.org/0000-0002-9121-7613)
- Bulent Taner Karadag (ORCID: https://orcid.org/0000-0003-0605-8871)
- Cansu Yılmaz Yeğit (ORCID: https://orcid.org/0000-0001-8239-4776)
- Pınar Ergenekon (ORCID: https://orcid.org/0000-0003-0228-9832)
- Randall Messier (ORCID: https://orcid.org/0009-0002-4271-9657)
- Damla Kocaman
- Neval Meti̇n Çakar (ORCID: https://orcid.org/0000-0001-7943-0967)
- Gamze Taştan
- Ilknur Gorgun
Institutions
- Marmara University (TR)
Publication Details
- Journal
- Pediatric Pulmonology
- Published
- 2025-02-01
- DOI
- https://doi.org/10.1002/ppul.27506
- Citations
- 2
- Primary Topic
- Cystic Fibrosis Research Advances
- Type
- article
- Field-Weighted Citation Impact
- 3.04