Lived Education Experience of Young Adults With Childhood- and Adult-Onset Systemic Lupus Erythematosus: A Multicenter Canadian Qualitative Study
Whereas most participants were successfully engaging in higher education, their performance was often negatively affected by the physical and cognitive toll of SLE. Social support and academic accommodations helped to alleviate the challenges experienced by this group. Going forward, clinicians should initiate conversations about the educational experiences of young adults with SLE to proactively address the challenges they may face.
Authors
- Zahi Touma (ORCID: https://orcid.org/0000-0001-5177-2076)
- Fareha Nishat (ORCID: https://orcid.org/0000-0001-7166-2034)
- Roberta L. Woodgate (ORCID: https://orcid.org/0000-0002-7176-2390)
- CHRISTINE A. PESCHKEN (ORCID: https://orcid.org/0000-0002-4269-5213)
- Diane Lacaille (ORCID: https://orcid.org/0000-0002-4065-4151)
- Kaitlyn A. Merrill
- Jennifer L. P. Protudjer (ORCID: https://orcid.org/0000-0002-3888-8688)
- Jennifer Nan Stinson (ORCID: https://orcid.org/0000-0002-9969-8052)
- Lily Siok Hoon Lim (ORCID: https://orcid.org/0000-0002-0675-0668)
- Michael A. Golding (ORCID: https://orcid.org/0000-0002-7426-3386)
- Umut Oğuzoğlu
- Ramandeep Kaur (ORCID: https://orcid.org/0000-0002-0815-3031)
Institutions
- University of British Columbia (CA)
- University of Toronto (CA)
- Toronto Western Hospital (CA)
- Research Manitoba (CA)
- Children's Hospital Research Institute of Manitoba (CA)
- George & Fay Yee Centre for Healthcare Innovation (CA)
- Research Canada (CA)
- Institute for Clinical Evaluative Sciences (CA)
- Arthritis Research Centre of Canada (CA)
- Krembil Research Institute
- University of Manitoba (CA)
Publication Details
- Journal
- The Journal of Rheumatology
- Published
- 2025-02-01
- DOI
- https://doi.org/10.3899/jrheum.2024-0695
- Primary Topic
- Systemic Lupus Erythematosus Research
- Type
- article
- Field-Weighted Citation Impact
- 0.00