Comparison of specialist ataxia centres with non-specialist services in terms of care access and organisation, health services resource utilisation and costs in Germany using patient-reported data
This study provides useful information about ataxia patient care pathways in Germany, with higher patients' satisfaction in SAC compared to non-SAC, without a significant difference in costs. The findings can be used to change policy for better care for people with these rare complex neurological diseases.
Authors
- Julie Vallortigara (ORCID: https://orcid.org/0000-0002-2092-5073)
- Stephen Morris (ORCID: https://orcid.org/0000-0002-5828-3563)
- Carola Reinhard
- Paola Giunti (ORCID: https://orcid.org/0000-0003-3508-4788)
- Julie Greenfield (ORCID: https://orcid.org/0000-0003-2876-4849)
- Holm Graeßner (ORCID: https://orcid.org/0000-0001-9803-7183)
- Barry Hunt
- Andreas Nadke
- Bart-Jan Schuman (ORCID: https://orcid.org/0000-0002-7558-6902)
- Deborah Hoffman
Institutions
- University of Cambridge (GB)
- Ataxia UK (GB)
- Takeda (United States) (US)
- Friedreich's Ataxia Research Alliance (US)
- Deutsche Homöopathie-Union (DE)
- National Hospital for Neurology and Neurosurgery (GB)
- University College London (GB)
- University of Tübingen (DE)
Publication Details
- Journal
- Heliyon
- Published
- 2025-01-29
- DOI
- https://doi.org/10.1016/j.heliyon.2025.e42121
- Citations
- 1
- Primary Topic
- Genetic Neurodegenerative Diseases
- Type
- article
- Field-Weighted Citation Impact
- 0.91
Funders
- Ataxia UK
- European Brain Council
- Medical Research Council