Development and application of a clinical core data set for deep brain stimulation in Parkinson’s disease, dystonia or tremor: from data collection to data exchange and data sharing
Within the ReTune project, a standardised clinical core data set for Parkinson's disease, dystonia and tremor was developed. The collection as well as concepts for the implementation of monitoring and data exchange were elaborated and successfully tested. Trial registration number ClinicalTrials.gov (DRKS-ID: DRKS00031878).
Authors
- Andrea A. Kühn (ORCID: https://orcid.org/0000-0002-4134-9060)
- Anna‐Lena Hofmann (ORCID: https://orcid.org/0000-0002-0409-7124)
- Christian Johannes Hartmann (ORCID: https://orcid.org/0009-0004-3700-3536)
- Julian Haug (ORCID: https://orcid.org/0000-0001-6323-3184)
- Alfons Schnitzler (ORCID: https://orcid.org/0000-0002-6414-7939)
- Rüdiger Pryss (ORCID: https://orcid.org/0000-0003-1522-785X)
- Jonas Widmann (ORCID: https://orcid.org/0009-0007-0112-6173)
- Peter U. Heuschmann (ORCID: https://orcid.org/0000-0002-2681-3515)
- Jasper Mecklenburg (ORCID: https://orcid.org/0000-0002-0777-0038)
- Jens Volkmann (ORCID: https://orcid.org/0000-0002-9570-593X)
- Lilly Brandstetter (ORCID: https://orcid.org/0000-0003-0158-5402)
- Fabian Haug (ORCID: https://orcid.org/0000-0001-5697-3686)
- Patricia Krause (ORCID: https://orcid.org/0000-0001-9063-0556)
- Kirsten Haas (ORCID: https://orcid.org/0000-0002-2731-9017)
- Philipp Capetian (ORCID: https://orcid.org/0000-0003-1712-3659)
- Petra Ritter (ORCID: https://orcid.org/0000-0002-4643-4782)
- Christian Niklas (ORCID: https://orcid.org/0000-0002-8887-0996)
- Udo Selig
- Andrea Kreichgauer
Institutions
- Heidelberg University (DE)
- University of Würzburg (DE)
- University Hospital Heidelberg (DE)
- Humboldt-Universität zu Berlin (DE)
- Düsseldorf University Hospital (DE)
- Einstein Center Digital Future (DE)
- Universitätsklinikum Würzburg (DE)
- Berlin Institute of Health at Charité - Universitätsmedizin Berlin (DE)
- Bernstein Center for Computational Neuroscience Berlin (DE)
- Heinrich Heine University Düsseldorf (DE)
- Freie Universität Berlin (DE)
- Charité - Universitätsmedizin Berlin (DE)
Publication Details
- Journal
- Neurological Research and Practice
- Published
- 2025-01-29
- DOI
- https://doi.org/10.1186/s42466-024-00362-z
- Citations
- 1
- Primary Topic
- Neurological disorders and treatments
- Type
- article
- Field-Weighted Citation Impact
- 1.39
Funders
- Deutsche Forschungsgemeinschaft
- Julius-Maximilians-Universität Würzburg