Exploring the clinical profiles and management of juvenile dermatomyositis in Africa: a survey of African rheumatology care providers
This is the first study to explore experiences of providers caring for children with JDM in Africa. Respondents identified 216 children with JDM seen within the last 10 years, exceeding the 196 children with JDM reported within the last 25 years but likely still underestimating prevalence. Our findings align with reports of severe manifestations and poor outcomes in African children with JDM. Access to many diagnostics and medications is limited, and differences in accessibility parallel regional healthcare disparities. The potential differences in JDM severity warrant systematic study and highlight the need to include patients and providers from LMIC in collaborative research efforts.
Authors
- Joan Ahimbisibwe
- Jessica Perfetto (ORCID: https://orcid.org/0000-0001-8244-7348)
- Angela Migowa (ORCID: https://orcid.org/0000-0002-1146-7963)
- Christiaan Scott (ORCID: https://orcid.org/0000-0003-3874-1704)
- Dawn M. Wahezi (ORCID: https://orcid.org/0000-0002-0543-7805)
- Kate Webb (ORCID: https://orcid.org/0000-0003-1087-5946)
- Laura B. Lewandowski (ORCID: https://orcid.org/0000-0002-4253-2545)
- Vanessa Ogega
Institutions
- Children's Hospital of Eastern Ontario (CA)
- NYU Langone Health (US)
- National Institute of Arthritis and Musculoskeletal and Skin Diseases (US)
- Children's Hospital at Montefiore (US)
- Red Cross War Memorial Children's Hospital (ZA)
Publication Details
- Journal
- Pediatric Rheumatology
- Published
- 2025-01-27
- DOI
- https://doi.org/10.1186/s12969-024-01009-8
- Primary Topic
- Inflammatory Myopathies and Dermatomyositis
- Type
- article
- Field-Weighted Citation Impact
- 0.00
Funders
- Georgia Clinical and Translational Science Alliance
- National Institutes of Health
- National Center for Advancing Translational Sciences