Data Collection Variability Across Neonatal Hypoxic-Ischemic Encephalopathy Registries
Many HIE registries are collecting patient data around the world, but there is considerable variability in the number, type, and format of data collected. Future attempts to develop standard common data elements to harmonize data collection globally will be crucial to facilitate worldwide collaboration and to optimize management and outcome of neonatal HIE.
Authors
- Alexa Craig (ORCID: https://orcid.org/0000-0002-6477-3390)
- Jehier K. Afifi (ORCID: https://orcid.org/0000-0001-7651-3054)
- Janet S. Soul (ORCID: https://orcid.org/0000-0001-6998-7753)
- Vann Chau (ORCID: https://orcid.org/0000-0001-8260-8738)
- Khorshid Mohammad (ORCID: https://orcid.org/0000-0002-3568-7282)
- Sonia L. Bonifacio (ORCID: https://orcid.org/0000-0002-4171-7900)
- Danielle Guez‐Barber (ORCID: https://orcid.org/0000-0002-1086-8001)
- Betsy Pilon (ORCID: https://orcid.org/0000-0003-0036-5803)
- Pia Wintermark (ORCID: https://orcid.org/0000-0002-7611-6670)
- Eric S. Peeples (ORCID: https://orcid.org/0000-0002-2892-2678)
- Eleanor J. Molloy (ORCID: https://orcid.org/0000-0001-6798-2158)
- Gabrielle deVeber
- Ulrike Mietzsch
Institutions
- Boston Children's Hospital (US)
- Dalhousie University (CA)
- Nebraska Medical Center (US)
- Lucile Packard Children's Hospital (US)
- University of Calgary (CA)
- University of Toronto (CA)
- Trinity College Dublin (IE)
- Montreal Children's Hospital (CA)
- Hospital for Sick Children (CA)
- Children's Health Ireland at Crumlin (IE)
- Children's Hospital Colorado (US)
- Seattle Children's Hospital (US)
- Cranbrook Academy of Art (US)
- Children's Hospital & Medical Center (US)
- Barbara Bush Children’s Hospital (US)
- University of Colorado Anschutz Medical Campus (US)
- University of Colorado Denver (US)
Publication Details
- Journal
- The Journal of Pediatrics
- Published
- 2025-01-23
- DOI
- https://doi.org/10.1016/j.jpeds.2025.114476
- Citations
- 5
- Primary Topic
- Neonatal and fetal brain pathology
- Type
- article
- Field-Weighted Citation Impact
- 17.47