Wellbeing and quality of life among parents of individuals with Fontan physiology
While parents of individuals with Fontan physiology report good global QOL, challenges in health-related QOL exist. We identified key psychological, sociodemographic, and health-related factors associated with parental QOL outcomes. These data may aid early identification of physical and psychosocial difficulties and guide targeted health resource allocation for this population.
Authors
- Rachael Cordina (ORCID: https://orcid.org/0000-0001-7882-389X)
- David S. Winlaw (ORCID: https://orcid.org/0000-0001-8005-3361)
- Ajay J. Iyengar (ORCID: https://orcid.org/0000-0002-0609-674X)
- Susan Woolfenden (ORCID: https://orcid.org/0000-0002-6954-5071)
- David S. Celermajer (ORCID: https://orcid.org/0000-0001-7640-0439)
- Kate Marshall (ORCID: https://orcid.org/0000-0002-7046-5773)
- K. Eagleson (ORCID: https://orcid.org/0000-0002-9134-4188)
- Dominica Zentner (ORCID: https://orcid.org/0000-0003-0437-1581)
- Diana Zannino (ORCID: https://orcid.org/0000-0002-6890-3965)
- Gary F. Sholler (ORCID: https://orcid.org/0000-0003-1501-8898)
- Nadine A. Kasparian (ORCID: https://orcid.org/0000-0001-8075-6817)
- Yves d’Udekem (ORCID: https://orcid.org/0000-0003-1851-7836)
Institutions
- Cincinnati Children's Hospital Medical Center (US)
- Lurie Children's Hospital (US)
- The University of Sydney (AU)
- The Royal Melbourne Hospital (AU)
- Children's National (US)
- University of Auckland (NZ)
- The University of Queensland (AU)
- The University of Melbourne (AU)
- Royal Prince Alfred Hospital (AU)
- UNSW Sydney (AU)
- Sydney Local Health District (AU)
- Starship Children's Health (NZ)
- Sydney Children’s Hospitals Network (AU)
- Murdoch Children's Research Institute (AU)
- Children's Health Queensland Hospital and Health Service (AU)
- University of Cincinnati Medical Center (US)
Publication Details
- Journal
- Quality of Life Research
- Published
- 2025-01-22
- DOI
- https://doi.org/10.1007/s11136-025-03890-6
- Citations
- 1
- Primary Topic
- Congenital Heart Disease Studies
- Type
- article
- Field-Weighted Citation Impact
- 1.35
Funders
- Cincinnati Children's Hospital Medical Center
- HeartKids Australia
- Children’s Hospital of Wisconsin Research Institute
- Children's Hospital Foundation
- Murdoch Children's Research Institute
- University of New South Wales
- Medical Research Council
- National Health and Medical Research Council