Moving from a registry to a learning health system: A case study of a Dutch prostate cancer registry
Our findings provide practical recommendations to support registries in transitioning towards LHSs by leveraging and expanding their infrastructure for continuous learning. We identified technical, interpersonal, and organizational factors that facilitate continuous and rapid learning using real-world data, create transparent and collaborative infrastructures, and help to navigate the complexity of the healthcare system.
Authors
- Malou C. P. Kuppen (ORCID: https://orcid.org/0000-0001-8908-1684)
- Welmoed K. van Deen (ORCID: https://orcid.org/0000-0002-4836-9849)
- Carin A. Uyl‐de Groot (ORCID: https://orcid.org/0000-0001-5808-302X)
- D. Andries Bosch (ORCID: https://orcid.org/0009-0008-5354-8279)
- Inge M. van Oort (ORCID: https://orcid.org/0000-0002-8002-1869)
- Saskia de Groot (ORCID: https://orcid.org/0000-0003-2782-3114)
- Tom Belleman (ORCID: https://orcid.org/0000-0002-9086-6558)
- Kim J. M. van der Velden (ORCID: https://orcid.org/0009-0004-9986-2416)
- Jeroen D. H. van Wijngaarden
Institutions
- Radboud University Nijmegen (NL)
- Maastricht University Medical Centre (NL)
- Erasmus MC (NL)
- Radboud University Medical Center (NL)
- Maastro Clinic (NL)
- Erasmus University Rotterdam (NL)
Publication Details
- Journal
- Learning Health Systems
- Published
- 2025-01-16
- DOI
- https://doi.org/10.1002/lrh2.10476
- Citations
- 1
- Primary Topic
- Primary Care and Health Outcomes
- Type
- article
- Field-Weighted Citation Impact
- 2.82
Funders
- Zorginstituut Nederland