Virginia Memory Project: Using the Healthy Brain Initiative Roadmap to design a statewide dementia registry
Integrated the Healthy Brain Initiative (HBI) domains into the newest statewide epidemiological dementia registry in the Commonwealth of Virginia. Collected data and identified gaps in the current research related to dementia and Alzheimer's related diseases. Aimed to mitigate barriers to dementia registry enrollment by identifying significant underdiagnosis and underrepresentation of racial and ethnic minority groups. Developed solutions to alleviate the current data and enrollment disparities and to connect individuals to research, physicians, and community groups.
Authors
- Catherine Macdonald (ORCID: https://orcid.org/0000-0003-2146-4966)
- Martin Farkas
- Evan French (ORCID: https://orcid.org/0000-0002-5809-5810)
- Annie Rhodes (ORCID: https://orcid.org/0000-0002-3097-918X)
- Andrea Price
- Daniel Bluestein (ORCID: https://orcid.org/0000-0003-3057-8957)
- Brian Battle
- Lana Sargent (ORCID: https://orcid.org/0000-0001-5555-9985)
- Faika Zanjani (ORCID: https://orcid.org/0000-0001-5808-6116)
- Rachel Coney
- Kimberly Ivey
- Melicent Miller
- Ashley Staton
Institutions
- Virginia Department of Health (US)
- Virginia Commonwealth University (US)
Publication Details
- Journal
- Alzheimer s & Dementia
- Published
- 2025-01-16
- DOI
- https://doi.org/10.1002/alz.14478
- Primary Topic
- Dementia and Cognitive Impairment Research
- Type
- article
- Field-Weighted Citation Impact
- 0.00
Funders
- Virginia Department of Health
- Georgia Clinical and Translational Science Alliance
- Centers for Disease Control and Prevention
- National Center for Advancing Translational Sciences