Navigating ethics in HIV data and biomaterial management within Black, African, and Caribbean communities in Canada
The study underscores the need for culturally safe approaches in HIV testing and ethical governance in healthcare for ACB communities. It highlights the importance of prioritizing participant empowerment, ensuring transparency, practicing informed consent, and implementing robust data security measures to balance effective HIV information management with the protection of individual rights.
Authors
- Gayle Restall (ORCID: https://orcid.org/0000-0002-8656-6261)
- Chinyere Njeze (ORCID: https://orcid.org/0000-0003-1601-1372)
- Rusty Souleymanov (ORCID: https://orcid.org/0000-0002-2619-2704)
- Laurie Ringaert
- Patricia Ukoli
- Wangari Tharao (ORCID: https://orcid.org/0000-0001-6166-401X)
- A H Wilcox
- Linda Larcombe (ORCID: https://orcid.org/0000-0002-7828-1290)
- Bolaji Akinyele-Akanbi
- John Kim
- Paula Migliardi
- Michael L. Payne
Institutions
- Winnipeg Regional Health Authority (CA)
- Manitoba Health (CA)
- Public Health Agency of Canada (CA)
- Research Manitoba (CA)
- Nine Circles Community Health Centre (CA)
- Women's Health In Women's Hands (CA)
- Impact (CA)
- University of Manitoba (CA)
Publication Details
- Journal
- BMC Medical Ethics
- Published
- 2025-01-16
- DOI
- https://doi.org/10.1186/s12910-025-01161-0
- Citations
- 2
- Primary Topic
- Ethics in Clinical Research
- Type
- article
- Field-Weighted Citation Impact
- 3.76
Funders
- Canadian Institutes of Health Research