Transition of patients with Duchenne muscular dystrophy from paediatric to adult care: An international Delphi consensus study
These consensus statements provide guidelines for improving transition practices for young people with DMD and promoting continued care at a comparable standard in adulthood.
Authors
- Jo M. Wilmshurst (ORCID: https://orcid.org/0000-0001-7328-1796)
- Imelda J. M. de Groot (ORCID: https://orcid.org/0000-0003-1634-1427)
- Andrea Klein (ORCID: https://orcid.org/0000-0003-2733-5911)
- Jorge Carranza-del Río
- Ulrike Schara‐Schmidt (ORCID: https://orcid.org/0000-0001-5833-2751)
- Oscar H. Mayer (ORCID: https://orcid.org/0000-0003-3067-1545)
- Julie A. Quinlivan (ORCID: https://orcid.org/0000-0003-4706-2412)
- Luca Bello (ORCID: https://orcid.org/0000-0002-3075-6525)
- Karsten Vanden Wyngaert (ORCID: https://orcid.org/0000-0001-6063-9971)
- Anita Cairns (ORCID: https://orcid.org/0000-0002-7123-0351)
- Diana Castro (ORCID: https://orcid.org/0000-0001-9008-0208)
- Filippo Buccella (ORCID: https://orcid.org/0000-0002-1704-0143)
- Leanne Marie Ward (ORCID: https://orcid.org/0000-0003-1557-9185)
- Alessandro Onofri (ORCID: https://orcid.org/0000-0001-6527-0317)
- Hawken Miller
- Lauren Elman (ORCID: https://orcid.org/0000-0003-4706-950X)
- Thomas Sejersen (ORCID: https://orcid.org/0000-0001-5961-7097)
- Alexandra Prufer de Queiroz Campos Araújo (ORCID: https://orcid.org/0000-0003-2591-4354)
- Isabella Inzani
Institutions
- Universidade Federal do Rio de Janeiro (BR)
- Karolinska University Hospital (SE)
- Children's Hospital of Philadelphia (US)
- University of Padua (IT)
- University of Cape Town (ZA)
- Children's Hospital of Eastern Ontario (CA)
- Angiogenesis Foundation (US)
- Ghent University Hospital (BE)
- Parent Project Onlus (IT)
- Duchenne Parent Project (NL)
- University Children’s Hospital Bern (CH)
- Bambino Gesù Children's Hospital (IT)
- Texas Neurology (US)
- National Hospital for Neurology and Neurosurgery (GB)
- University of Celaya (MX)
- Red Cross War Memorial Children's Hospital (ZA)
- Children's Health Queensland Hospital and Health Service (AU)
- University College London (GB)
- University of Duisburg-Essen (DE)
- University of Pennsylvania (US)
Publication Details
- Journal
- European Journal of Paediatric Neurology
- Published
- 2025-01-01
- DOI
- https://doi.org/10.1016/j.ejpn.2025.01.004
- Citations
- 5
- Primary Topic
- Adolescent and Pediatric Healthcare
- Type
- article
- Field-Weighted Citation Impact
- 15.59
Funders
- University of Ottawa
- PTC Therapeutics
- Innovation and Technology Commission