Data solidarity: Operationalising public value through a digital tool

Most data governance frameworks are designed to protect the individuals from whom data originates. However, the impacts of digital practices extend to a broader population and are embedded in significant power asymmetries within and across nations. Further, inequities in digital societies impact everyone, not just those directly involved. Addressing these challenges requires an approach which moves beyond individual data control and is grounded in the values of equity and a just contribution of benefits and risks from data use. Solidarity-based data governance (in short: data solidarity), suggests prioritising data uses over data type and proposes that data uses that generate public value should be actively facilitated, those that generate significant risks and harms should be prohibited or strictly regulated, and those that generate private benefits with little or no public value should be 'taxed' so that profits generated by corporate data users are reinvested in the public domain. In the context of global health data governance, the public value generated by data use is crucial. This contribution clarifies the meaning, importance, and potential of public value within data solidarity and outlines methods for its operationalisation through the PLUTO tool, specifically designed to assess the public value of data uses.

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Publication Details

Journal
Global Public Health
Published
2025-01-10
DOI
https://doi.org/10.1080/17441692.2025.2450403
Citations
5
Primary Topic
Ethics in Clinical Research
Type
article
Field-Weighted Citation Impact
9.39
Controls
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article

Data solidarity: Operationalising public value through a digital tool

Seliem El-Sayed, Barbara Prainsack, Ilona Kickbusch
5 citations
Global Public Health
Ethics in Clinical Research
9.39
article

Data solidarity: Operationalising public value through a digital tool

Seliem El-Sayed, Barbara Prainsack, Ilona Kickbusch
article en
5 citations

Abstract

Most data governance frameworks are designed to protect the individuals from whom data originates. However, the impacts of digital practices extend to a broader population and are embedded in significant power asymmetries within and across nations. Further, inequities in digital societies impact everyone, not just those directly involved. Addressing these challenges requires an approach which moves beyond individual data control and is grounded in the values of equity and a just contribution of benefits and risks from data use. Solidarity-based data governance (in short: data solidarity), suggests prioritising data uses over data type and proposes that data uses that generate public value should be actively facilitated, those that generate significant risks and harms should be prohibited or strictly regulated, and those that generate private benefits with little or no public value should be 'taxed' so that profits generated by corporate data users are reinvested in the public domain. In the context of global health data governance, the public value generated by data use is crucial. This contribution clarifies the meaning, importance, and potential of public value within data solidarity and outlines methods for its operationalisation through the PLUTO tool, specifically designed to assess the public value of data uses.

Global Public HealthVol. 20(1)
University of Vienna (AT), Graduate Institute of International and Development Studies (CH)
Reduced inequalities
Openalex Percentile: Top 2%
Ethics in Clinical Research
9.39
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Data solidarity: Operationalising public value through a digital tool — Seliem El-Sayed, Barbara Prainsack, et al. · Global Public Health (2025) | TGRS Research Map | TGRS