What research participants say about their research experiences in Empowering the Participant Voice: Outcomes and actionable data
RPPS results from 5045 participants from seven CTSAs provide a valuable evidence base for evaluating participants' research experiences and using participant feedback to improve research programs. Analyses revealed opportunities for improving research practices. Sites piloting local change initiatives based on RPPS findings demonstrated measurable positive impact.
Authors
- Rhonda G. Kost (ORCID: https://orcid.org/0000-0002-5419-0589)
- Ann Dozier (ORCID: https://orcid.org/0000-0001-8296-1910)
- Carrie Dykes (ORCID: https://orcid.org/0000-0001-8230-1699)
- Adam Qureshi (ORCID: https://orcid.org/0000-0003-1987-2266)
- Lisa Connally
- Jamie Roberts (ORCID: https://orcid.org/0000-0001-8508-8205)
- Caroline S. Jiang (ORCID: https://orcid.org/0000-0001-6765-6280)
- Nancy Green (ORCID: https://orcid.org/0000-0002-9877-1561)
- Ranee Chatterjee (ORCID: https://orcid.org/0000-0002-4294-8081)
- Sierra Lindo
- Alex Cheng (ORCID: https://orcid.org/0000-0002-1787-691X)
- Daniel E. Ford (ORCID: https://orcid.org/0000-0002-2549-2289)
- Liz Martinez (ORCID: https://orcid.org/0000-0002-1640-2587)
- Joseph Andrews (ORCID: https://orcid.org/0000-0003-1063-2100)
- Natalie Schlesinger
- Karen Marder
- Sana Khoury-Shakour
Institutions
- Johns Hopkins University (US)
- Duke University (US)
- University of California, Santa Cruz (US)
- Vanderbilt University (US)
- University of Michigan (US)
- Columbia University Irving Medical Center (US)
- Johns Hopkins Medicine (US)
- Cancer Institute (WIA) (IN)
- University of California System (US)
- Clinical Research Institute (US)
- Southern California Clinical and Translational Science Institute (US)
- Duke Medical Center (US)
- Duke Cancer Institute
- University of Rochester (US)
- Rockefeller University (US)
Publication Details
- Journal
- Journal of Clinical and Translational Science
- Published
- 2025-01-01
- DOI
- https://doi.org/10.1017/cts.2025.3
- Citations
- 6
- Primary Topic
- Ethics in Clinical Research
- Type
- article
- Field-Weighted Citation Impact
- 11.27
Funders
- Vanderbilt University
- Johns Hopkins University
- University of Rochester
- University of Cambridge
- National Institutes of Health