Living in a bubble with profound difficulties—parents' experiences of extremely preterm survivors
The findings highlight the need to improve support systems and address challenges for families of preterm born children. Enhancing collaboration between healthcare providers and families, identifying and overcoming barriers during care, and providing comprehensive support services are crucial. Addressing the parents' experienced deficits may mitigate potential adverse effects on family health outcomes.
Authors
- Boubou Hallberg (ORCID: https://orcid.org/0000-0002-2928-3126)
- Ann Hellström (ORCID: https://orcid.org/0000-0002-9259-1244)
- Pia Lundgren (ORCID: https://orcid.org/0000-0002-7731-1988)
- Malin Hansson (ORCID: https://orcid.org/0000-0003-0877-2366)
- Chatarina Löfqvist (ORCID: https://orcid.org/0000-0003-4371-5164)
- Karin Sävman
- Aldina Pivodic (ORCID: https://orcid.org/0000-0002-2224-3236)
- Jenny Gyllén (ORCID: https://orcid.org/0000-0002-6003-3352)
- Eva Morsing (ORCID: https://orcid.org/0000-0001-6871-6070)
- Carola Pfeiffer‐Mosesson
- David Ley (ORCID: https://orcid.org/0000-0002-7498-6883)
Institutions
- Lund University (SE)
- Sahlgrenska University Hospital (SE)
- Region Västra Götaland (SE)
- Healthcare in Sweden (SE)
- Skåne University Hospital (SE)
- University of Gothenburg (SE)
Publication Details
- Journal
- Acta Paediatrica
- Published
- 2025-01-10
- DOI
- https://doi.org/10.1111/apa.17577
- Citations
- 1
- Primary Topic
- Infant Development and Preterm Care
- Type
- article
- Field-Weighted Citation Impact
- 3.49
Funders
- Knut och Alice Wallenbergs Stiftelse
- De Blindas Vänner
- Medical Research Council