Can patients and caregivers be authors of peer-reviewed publications?
n ncreasingly, patients' and caregivers' experiences, needs, and desires are being considered in medical research and in the development and selection of treatments. 1 Patient engagement in research is a movement that promotes "the active, meaningful, and collaborative interaction between patients and researchers across all stages of the research process, guided by patients' contributions as partners, rec ognising their specific experiences, values, and expertise." 2 In some cases, for example when the patient is a child, the caregiver may be better positioned to play this role, so, in this context, "patient" can also mean a caregiver, family member, or repre sen tative of a patient association.Patient engagement can take many forms, including in the conception, planning, conduct, interpretation, or dissemination of research. [3][4]][5] It can range from patients or caregivers serving as consultants to themselves driving research or its dissemination. 6,7Underlying this is the understanding that people who have "lived experience" of a disease or condition can provide
Authors
- Danielle Drachmann (ORCID: https://orcid.org/0000-0001-8707-5619)
- Søren Skovlund (ORCID: https://orcid.org/0000-0003-3464-0885)
- Phillip S. Leventhal
Publication Details
- Journal
- Medical Writing
- Published
- 2024-12-01
- DOI
- https://doi.org/10.56012/idde2040
- Primary Topic
- Academic Writing and Publishing
- Type
- article
- Field-Weighted Citation Impact
- 0.00