Impact of State‐Level Equity Indices on Psychosocial Outcomes Among Sexual and Gender Minority Caregivers of People with Alzheimer’s Disease and Related Dementias

Abstract Background Our previous work has found that sexual and gender minority (SGM) or LGBTQIA+ caregivers of people living with Alzheimer’s disease and related dementias (ADRD) experience higher levels of stigma, depressive symptoms, and stress than non‐SGM caregivers and that these outcomes are associated with experiences of microaggressions related to their SGM identities. Guided by the Health Equity Promotion Model, we sought to explore the impact of the environmental context on psychosocial outcomes among SGM caregivers of people living with ADRD. Methods Data from a cross‐sectional online survey using a non‐probabilistic sample of SGM caregivers of people with ADRD recruited via social media ( n = 284) were combined with publicly available data reporting composite equity climate index scores across five domains: legal/non‐discrimination protections, youth/family support, political/religious attitudes, health access/safety, and work environment/employment. The bimodal distribution of states by total equity climate score was used to create a low/high‐score variable for comparisons in global health status, lifetime and day‐to‐day discrimination, lifetime victimization, microaggression, perceived stress, family quality of life, caregiver stigma, and depressive symptoms. Results SGM caregivers of people with ADRD in states with lower equity climate scores reported significantly more experiences of microaggressions ( p = 0.036), lower levels of perceived stress ( p = 0.050) and family quality of life ( p = 0.037), and higher levels of caregiver stigma ( p <0.001) and depressive symptoms ( p <0.001) compared with SGM caregivers living in states with higher equity climate scores. Gay caregivers living in states with lower equity climate scores reported levels of caregiver stigma 18% higher than those living in states with higher equity scores ( p = 0.004). There were no significant differences in global health status, lifetime and day‐to‐day discrimination, and lifetime victimization by equity climate scores. Conclusion The environmental context of SGM lived experiences influences psychosocial outcomes related to ADRD caregiving. These differences may be driven by the unique minority stressors experienced by SGM caregivers of people with ADRD, which are known to influence the overall physical and mental health of the SGM population. Further research is warranted to understand the impact of these environmental influences on SGM caregivers of people with ADRD to develop supports and policy approaches to promote well‐being.

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Publication Details

Journal
Alzheimer s & Dementia
Published
2024-12-01
DOI
https://doi.org/10.1002/alz.089339
Primary Topic
Intergenerational Family Dynamics and Caregiving
Type
article
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article

Impact of State‐Level Equity Indices on Psychosocial Outcomes Among Sexual and Gender Minority Caregivers of People with Alzheimer’s Disease and Related Dementias

Jason D. Flatt, Jordan B. Westcott, Joseph Winberry, Joel G. Anderson et al.
Alzheimer s & Dementia
Intergenerational Family Dynamics and Caregiving
article

Impact of State‐Level Equity Indices on Psychosocial Outcomes Among Sexual and Gender Minority Caregivers of People with Alzheimer’s Disease and Related Dementias

Jason D. Flatt, Jordan B. Westcott, Joseph Winberry, Joel G. Anderson, Namrata Mukherjee, Kelly Hancock, Krystal Kittle
article en

Abstract

Abstract Background Our previous work has found that sexual and gender minority (SGM) or LGBTQIA+ caregivers of people living with Alzheimer’s disease and related dementias (ADRD) experience higher levels of stigma, depressive symptoms, and stress than non‐SGM caregivers and that these outcomes are associated with experiences of microaggressions related to their SGM identities. Guided by the Health Equity Promotion Model, we sought to explore the impact of the environmental context on psychosocial outcomes among SGM caregivers of people living with ADRD. Methods Data from a cross‐sectional online survey using a non‐probabilistic sample of SGM caregivers of people with ADRD recruited via social media ( n = 284) were combined with publicly available data reporting composite equity climate index scores across five domains: legal/non‐discrimination protections, youth/family support, political/religious attitudes, health access/safety, and work environment/employment. The bimodal distribution of states by total equity climate score was used to create a low/high‐score variable for comparisons in global health status, lifetime and day‐to‐day discrimination, lifetime victimization, microaggression, perceived stress, family quality of life, caregiver stigma, and depressive symptoms. Results SGM caregivers of people with ADRD in states with lower equity climate scores reported significantly more experiences of microaggressions ( p = 0.036), lower levels of perceived stress ( p = 0.050) and family quality of life ( p = 0.037), and higher levels of caregiver stigma ( p <0.001) and depressive symptoms ( p <0.001) compared with SGM caregivers living in states with higher equity climate scores. Gay caregivers living in states with lower equity climate scores reported levels of caregiver stigma 18% higher than those living in states with higher equity scores ( p = 0.004). There were no significant differences in global health status, lifetime and day‐to‐day discrimination, and lifetime victimization by equity climate scores. Conclusion The environmental context of SGM lived experiences influences psychosocial outcomes related to ADRD caregiving. These differences may be driven by the unique minority stressors experienced by SGM caregivers of people with ADRD, which are known to influence the overall physical and mental health of the SGM population. Further research is warranted to understand the impact of these environmental influences on SGM caregivers of people with ADRD to develop supports and policy approaches to promote well‐being.

Alzheimer s & DementiaVol. 20(S4)
University of North Carolina at Chapel Hill (US), University of Nevada, Las Vegas (US), University of Massachusetts Amherst (US), Knoxville College (US), University of Tennessee at Knoxville (US)
Openalex Percentile: Top 58%
Intergenerational Family Dynamics and Caregiving
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