Building a diverse national research advisory board

In healthcare and medical research, advisory boards are now commonplace, but most boards consist of a relatively homogenous, geographically collocated group, often demonstrating demographic imbalance. It is crucial to include individuals from diverse backgrounds on community advisory boards for healthcare and medical research to address ongoing health disparities and ensure studies are more culturally competent so that we can achieve more inclusive representation. We conducted purposeful recruitment to attract a demographically diverse group of community members across the United States (U.S.) to partner with the <i>All of Us</i> Research Program to inform our strategies including program recruitment, engagement, retention, and incentives. Recruitment of a diverse group of advisors and purposeful community building has created a psychologically safe environment where members openly share their opinions, thoughts, and perspectives to shape various aspects of this ambitious, nationwide research program.

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Institutions

Publication Details

Journal
Journal of Clinical and Translational Science
Published
2025-01-01
DOI
https://doi.org/10.1017/cts.2024.1169
Citations
1
Primary Topic
Ethics in Clinical Research
Type
article
Field-Weighted Citation Impact
1.88

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article

Building a diverse national research advisory board

Julia Moore Vogel, David R. Rodriguez, Gayle Valensky, Jeff B. Pawelek et al.
1 citations
Journal of Clinical and Translational Science
Ethics in Clinical Research
1.88
article

Building a diverse national research advisory board

Julia Moore Vogel, David R. Rodriguez, Gayle Valensky, Jeff B. Pawelek, Lauren Serpico, Maribel Pieters, Yulissa Perez
article en
1 citations

Abstract

In healthcare and medical research, advisory boards are now commonplace, but most boards consist of a relatively homogenous, geographically collocated group, often demonstrating demographic imbalance. It is crucial to include individuals from diverse backgrounds on community advisory boards for healthcare and medical research to address ongoing health disparities and ensure studies are more culturally competent so that we can achieve more inclusive representation. We conducted purposeful recruitment to attract a demographically diverse group of community members across the United States (U.S.) to partner with the <i>All of Us</i> Research Program to inform our strategies including program recruitment, engagement, retention, and incentives. Recruitment of a diverse group of advisors and purposeful community building has created a psychologically safe environment where members openly share their opinions, thoughts, and perspectives to shape various aspects of this ambitious, nationwide research program.

Journal of Clinical and Translational ScienceVol. 9(1)
Scripps Research Institute (US)
U.S. Department of Health and Human Services, National Institutes of Health
Partnerships for the goals
Openalex Percentile: Top 20%
Ethics in Clinical Research
1.88
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