Issues and Prospects for the Development of Biobanks: Trust or Caution in the Academic and Healthcare Community

The article analyzes the major obstacles impeding the development of biobanks in the Russian Federation, outlining future trends in this field. Biobanks form a key component of research infrastructure, serving as repositories for unique biological samples for use by researchers and physicians when investigating disease pathogenesis and developing personalized treatment decisions. The biobanking industry in Russia faces significant challenges, including low awareness among the general population and the professional community directly involved in the interaction with biobanks and donors. In addition, the lack of a coherent legal and regulatory framework, as well as social support measures, creates uncertainty regarding protection of the rights of potential donors and hinders the work of scientific organizations. The results obtained highlight the need for a comprehensive strategy to advance biobanking in Russia. This strategy should encompass the formulation of a legal and regulatory framework to foster public support for this initiative and facilitate a dialogue between the academic community, governmental agencies, and the larger public.

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Publication Details

Journal
Lex genetica.
Published
2024-12-27
DOI
https://doi.org/10.17803/lexgen-2024-3-4-7-24
Citations
1
Primary Topic
Ethics in Clinical Research
Type
article
Field-Weighted Citation Impact
0.54
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article

Issues and Prospects for the Development of Biobanks: Trust or Caution in the Academic and Healthcare Community

Igor Yu. Kogan, Anastasiia A. Mikhailova, Аndrey S. Glotov, Yu. A. Nasikhova
1 citations
Lex genetica.
Ethics in Clinical Research
0.54
article

Issues and Prospects for the Development of Biobanks: Trust or Caution in the Academic and Healthcare Community

Igor Yu. Kogan, Anastasiia A. Mikhailova, Аndrey S. Glotov, Yu. A. Nasikhova
article en
1 citations

Abstract

The article analyzes the major obstacles impeding the development of biobanks in the Russian Federation, outlining future trends in this field. Biobanks form a key component of research infrastructure, serving as repositories for unique biological samples for use by researchers and physicians when investigating disease pathogenesis and developing personalized treatment decisions. The biobanking industry in Russia faces significant challenges, including low awareness among the general population and the professional community directly involved in the interaction with biobanks and donors. In addition, the lack of a coherent legal and regulatory framework, as well as social support measures, creates uncertainty regarding protection of the rights of potential donors and hinders the work of scientific organizations. The results obtained highlight the need for a comprehensive strategy to advance biobanking in Russia. This strategy should encompass the formulation of a legal and regulatory framework to foster public support for this initiative and facilitate a dialogue between the academic community, governmental agencies, and the larger public.

Lex genetica.Vol. 3(4)
Research Institute of Obstetrics and Gynecology named after D.O. Ott (RU)
Industry, innovation and infrastructure, Partnerships for the goals
Openalex Percentile: Top 25%
Ethics in Clinical Research
0.54
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