Experiences of user-centred design with agile development for clinically supported self-management of Long Covid
The aim of the study reported here was to reflect and report on lessons learned from adapting HCI methods to fit into an agile development process delivering a digital intervention for people managing Long Covid. During the project, we maintained a record of all activities and interim design products. Subsequently, selected records were analysed qualitatively. Challenges included engaging patients managing this complex, debilitating health condition and fitting the digital intervention into different and evolving patient pathways provided by clinics. The key contributions of this paper are a description of the clinically supported self-management app, Living With Covid Recovery, and of adapted methods for user-centred design and testing; narratives on engaging diverse clinics integrating a digital health intervention in their care pathways; reflections on designing for diverse users; implications for design of future technologies for supported self-management; and insights into multidisciplinary working that are rarely discussed within HCI.
Authors
- Sandra J. Edwards (ORCID: https://orcid.org/0009-0001-8421-2590)
- Julia Bindman (ORCID: https://orcid.org/0009-0001-5364-4681)
- Belinda Cooper (ORCID: https://orcid.org/0009-0007-1133-3862)
- Jonathan Waywell
- David Sunkersing (ORCID: https://orcid.org/0000-0001-9010-1435)
- Melissa Heightman (ORCID: https://orcid.org/0000-0002-7507-2119)
- Stuart Linke (ORCID: https://orcid.org/0000-0003-2515-3946)
- Enrico Costanza (ORCID: https://orcid.org/0000-0002-1842-8342)
- Ann Blandford (ORCID: https://orcid.org/0000-0002-3198-7122)
- John Robert Hurst (ORCID: https://orcid.org/0000-0002-7246-6040)
- William Ricketts (ORCID: https://orcid.org/0000-0002-0475-0744)
- Henry Goodfellow (ORCID: https://orcid.org/0000-0002-0979-2839)
- Paul Pfeffer
- Katherine Bradbury (ORCID: https://orcid.org/0000-0001-5513-7571)
- Fiona A. Stevenson (ORCID: https://orcid.org/0000-0003-2139-2309)
- Fiona Hamilton (ORCID: https://orcid.org/0000-0002-3126-5074)
- Chris Robson (ORCID: https://orcid.org/0009-0007-8587-416X)
- Hannah Hylton (ORCID: https://orcid.org/0009-0002-5525-7869)
Institutions
- University College Hospital (GB)
- Barts Health NHS Trust (GB)
- University of Southampton (GB)
- University College London (GB)
Publication Details
- Journal
- ACM Transactions on Computer-Human Interaction
- Published
- 2025-01-09
- DOI
- https://doi.org/10.1145/3711839
- Citations
- 1
- Primary Topic
- Mobile Health and mHealth Applications
- Type
- article
- Field-Weighted Citation Impact
- 2.82
Funders
- National Institute for Health and Care Research
- Department of Health and Social Care
- National Institute for Health Research Applied Research Collaboration West