Recruitment, follow-up and survival in an 11-country cohort study of patients at the end of life and their relatives
Approximately 20 times the desired cohort size had to be screened for eligibility. Prognostication was difficult, we noted a wide distribution of survival after inclusion. Patients' ability to complete follow-up questionnaires declined well before death.
Authors
- Maria E. C. Schelin (ORCID: https://orcid.org/0000-0001-5486-7556)
- Carl Johan Fürst (ORCID: https://orcid.org/0000-0002-2406-6907)
- Dagny Faksvåg Haugen (ORCID: https://orcid.org/0000-0002-8592-4995)
- Melanie Joshi (ORCID: https://orcid.org/0000-0003-0130-3348)
- Sofía C. Zambrano (ORCID: https://orcid.org/0000-0002-0918-9722)
- Claudia Fischer (ORCID: https://orcid.org/0000-0001-7574-8097)
- John Ellershaw (ORCID: https://orcid.org/0000-0001-9789-3180)
- Urška Lunder
- Lia van Zuylen (ORCID: https://orcid.org/0000-0002-7142-7605)
- Vilma Tripodoro (ORCID: https://orcid.org/0000-0003-2328-6032)
- Steffen Eychmueller
- Pilar Barnestein‐Fonseca (ORCID: https://orcid.org/0000-0003-2767-8017)
- Christel Hedman (ORCID: https://orcid.org/0000-0003-4183-7598)
- Berivan Yildiz (ORCID: https://orcid.org/0000-0002-2385-213X)
- Judit Simon (ORCID: https://orcid.org/0000-0001-9279-8627)
- Ida J. Korfage (ORCID: https://orcid.org/0000-0001-6538-9115)
- Martina Egloff
- Stephen Mason (ORCID: https://orcid.org/0000-0002-4020-6869)
- Aǵnes van der Heide
Institutions
- University of Bern (CH)
- University of Liverpool (GB)
- University of Cologne (DE)
- Lund University (SE)
- Haukeland University Hospital (NO)
- University Hospital of Bern (CH)
- Erasmus MC (NL)
- Swedish Foundation for Strategic Research (SE)
- Karolinska Institutet (SE)
- University Clinic of Pulmonary and Allergic Diseases Golnik (SI)
- Institute of Social and Preventive Medicine (CH)
- Estudios Clínicos Latinoamérica (AR)
- Andalusian Centre for Nanomedicine and Biotechnology (ES)
- Amsterdam University Medical Centers (NL)
- University Hospital Cologne (DE)
- Instituto de Investigación Biomédica de Málaga (ES)
- University of Bergen (NO)
- Medical University of Vienna (AT)
- Universidad de Navarra (ES)
Publication Details
- Journal
- PLoS ONE
- Published
- 2025-01-09
- DOI
- https://doi.org/10.1371/journal.pone.0317002
- Citations
- 3
- Primary Topic
- Palliative Care and End-of-Life Issues
- Type
- article
- Field-Weighted Citation Impact
- 5.64
Funders
- European Commission
- Lunds Universitet
- Universität zu Köln
- Haukeland Universitetssjukehus
- St Vincent's Hospital Melbourne
- HORIZON EUROPE Framework Programme
- Erasmus Universitair Medisch Centrum Rotterdam