Preliminary Study on Parental Perspectives Regarding Early Information for Parents Dealing with Autism Spectrum Disorder (ASD) Children

Acceptance for parents of children with Autism Spectrum Disorder (ASD) is not an easy feat. They grapple with various challenges and pressures concerning their child's behavior as they grow up. As a result, parents begin seeking information about their child's behavior, symptoms, treatment options, therapy, agencies, and various other relevant matters as an initial step in their course of action. The conducted study aims to explore the perspectives of parents regarding the initial information required to navigate the challenges of raising a child with autism spectrum disorder (ASD). A qualitative approach was chosen, utilizing purposive sampling of 24 parents who have children with autism, whether formally diagnosed by experts or currently undergoing treatment or therapy for the confirmation process. The findings from interviews were analyzed thematically and yielded four overarching themes: information channels and content, support services, treatments and therapies, and the trajectory of children with autism. In conclusion, parents of children with Autism Spectrum Disorder (ASD) are in dire need of early-stage information regarding this condition, ensuring that their child is on the appropriate path to meet their specific needs. Given that this study only explores the informational needs of parents, it is recommended that future research endeavors delve into the broader requirements of families with autism, including financial assistance, relevant agencies, training, and workshops to provide comprehensive support to families with children diagnosed with autism.