ASSESSING HEALTH BEHAVIORS AND WELLBEING OF NON-SPOUSAL LGBTQIA+ CAREGIVERS OF PEOPLE WITH AD/ADRD

Abstract Informal caregivers of people living with Alzheimer’s Disease (AD) or AD-Related Dementias (AD/ADRD) face high levels of burden and stress, while LGBTQIA+ identifying individuals often experience stigmatization and discrimination. Young adults are increasingly involved in caregiving for older adult relatives. To date, there is limited research related to the experiences LGBTQIA+ dementia caregivers, particularly those who are not spousal partners of care recipients. We conducted an online survey of LGBTQIA+, non-spousal caregivers, recruited through the Prolific platform. Participants (n=116) responded to items about health-behaviors (e.g., physical activity, sleep hygiene, alcohol use) and caregiving experiences (e.g., burden). Participants most commonly identified as white (n=63, 53.4%), women (n=64, 54.2%), and bisexual (n=71, 60.2%). The average age was 37.64 (SD=12.44) years and participants reported 25.54 (SD=25.17) average weekly hours caring for parents (n=56, 48.3%), grandparents (n=40, 34.5%), or others (n=24, 20.7%). Participants most commonly were ‘moderately active’ (n=70, 60.3%), had poor sleep quality (M=2.32 / 4, SD=.87), moderate alcohol use (n=52, 50.5% reported 3-6 drinks per session) and caregiver burden (M=13.54, SD=7.19). Participants reported feelings of loneliness (M=5.39/ 9, SD=2.04) and depressive symptoms (M=9.32, SD= 7.22), both of which were predicted by caregiver burden (Loneliness: F=2.73, p<.001, Adj. R2=.30; Depressive Symptoms: F=2.92, p<.001, Adj. R2=.32). Non-spousal LGBTQIA+ dementia caregivers reported suboptimal health behaviors, partially associated with time and other constraints related to caregiving. Further, caregiver burden was associated with both loneliness and depressive symptoms. Additional research and interventions are needed to promote health and reduce burden among this population.

Authors

Institutions

Publication Details

Journal
Innovation in Aging
Published
2024-12-01
DOI
https://doi.org/10.1093/geroni/igae098.4119
Primary Topic
Genetic Syndromes and Imprinting
Type
article
Field-Weighted Citation Impact
0.00
Controls
|||
ALL TIME
JAN
FEB
MAR
APR
MAY
JUN
JUL
AUG
SEP
OCT
article

ASSESSING HEALTH BEHAVIORS AND WELLBEING OF NON-SPOUSAL LGBTQIA+ CAREGIVERS OF PEOPLE WITH AD/ADRD

Andrew C. Pickett, Clover Caldwell, Nicole E. Werner, Heather L. Schwartz et al.
Innovation in Aging
Genetic Syndromes and Imprinting
article

ASSESSING HEALTH BEHAVIORS AND WELLBEING OF NON-SPOUSAL LGBTQIA+ CAREGIVERS OF PEOPLE WITH AD/ADRD

Andrew C. Pickett, Clover Caldwell, Nicole E. Werner, Heather L. Schwartz, A J Slowey
article en

Abstract

Abstract Informal caregivers of people living with Alzheimer’s Disease (AD) or AD-Related Dementias (AD/ADRD) face high levels of burden and stress, while LGBTQIA+ identifying individuals often experience stigmatization and discrimination. Young adults are increasingly involved in caregiving for older adult relatives. To date, there is limited research related to the experiences LGBTQIA+ dementia caregivers, particularly those who are not spousal partners of care recipients. We conducted an online survey of LGBTQIA+, non-spousal caregivers, recruited through the Prolific platform. Participants (n=116) responded to items about health-behaviors (e.g., physical activity, sleep hygiene, alcohol use) and caregiving experiences (e.g., burden). Participants most commonly identified as white (n=63, 53.4%), women (n=64, 54.2%), and bisexual (n=71, 60.2%). The average age was 37.64 (SD=12.44) years and participants reported 25.54 (SD=25.17) average weekly hours caring for parents (n=56, 48.3%), grandparents (n=40, 34.5%), or others (n=24, 20.7%). Participants most commonly were ‘moderately active’ (n=70, 60.3%), had poor sleep quality (M=2.32 / 4, SD=.87), moderate alcohol use (n=52, 50.5% reported 3-6 drinks per session) and caregiver burden (M=13.54, SD=7.19). Participants reported feelings of loneliness (M=5.39/ 9, SD=2.04) and depressive symptoms (M=9.32, SD= 7.22), both of which were predicted by caregiver burden (Loneliness: F=2.73, p<.001, Adj. R2=.30; Depressive Symptoms: F=2.92, p<.001, Adj. R2=.32). Non-spousal LGBTQIA+ dementia caregivers reported suboptimal health behaviors, partially associated with time and other constraints related to caregiving. Further, caregiver burden was associated with both loneliness and depressive symptoms. Additional research and interventions are needed to promote health and reduce burden among this population.

Innovation in AgingVol. 8(Supplement_1)
Indiana University Bloomington (US)
Openalex Percentile: Top 73%
Genetic Syndromes and Imprinting
AI Navigator

Ask Laika to Summarize, Analyze, and Connect papers live on the map.

Summarize Papers & Methodologies

Extract key findings, datasets, and comparative methods across publications.

Benchmark Rankings & Visual Analytics

Rank top research institutions, authors, funders, topics, and journals by Field-Weighted Citation Impact (FWCI) and paper volume with instant charts.

Connect Distant Disciplines

Bridge topological clusters on the map to find hidden collaborative intersections.