A Qualitative Study on the Caregiving Experiences of Parents of Young Adults with Mental Disorders

Purpose: The incidence of mental disorders in young adults has been increasing since the COVID-19 pandemic. The specific characteristics of young adults with mental disorders can lead to significant caregiving challenges. Understanding these challenges can help healthcare professionals provide timely interventions and support. Thus, this study aimed to understand the caregiving experiences of parents of young adult children with mental disorders and to grasp their essential meaning.Methods: A qualitative phenomenological design was adopted. Semi-structured individual interviews were conducted with nine parents and the data were analyzed using the phenomenological method. Data collection was conducted by nine parents of young adult children with mental disorders from July to October 2023 at S General Hospital.Results: The analysis revealed the overarching theme of “A journey of finding hope in a dark tunnel,” supported by three main themes: 1) life feels like walking on eggshells with the child; 2) being aware of the changing family lifestyle and seeking balance; and 3) lifelong tasks for parents and society.Conclusion: Parents experienced various difficulties intertwined with their own and their child’s developmental tasks. However, both the parents and children grew, discovering positive elements such as happiness and hope.