Quality of life in patients with Sjögren's syndrome: habits and practices in Iberoamerica. A perspective from the administration

Objective: Determine the circumstances (labor, social, economic, emotional, physical) that accompany patients diagnosed with Sjögren's Syndrome from the perspective of administration and with a gender focus. The above in the context of Ibero-America and for a period that includes the first 20 years of the 21st century. Methodology: Theoretical review of articles related to Sjögren's Syndrome, quality of life in its health, economy and work dimensions, and legislative initiatives on rare diseases. A questionnaire was applied based on those already validated on Quality of Life, the responses were analyzed with SPSS, Excel, StatGraphics. Results: The disease affects job stability, economic stability, social relationships and decreases physical and mental health. Adaptations are required in the work environment. The financial costs are high if it does not have health insurance. Routine exercise and diet generate a perception of reduced symptoms to continue with a normal productive life.