The vulnerability of data genetics holders in the biotechnology revolution

Technological advances in the genetic area arouse interest, as they make it possible to diagnose and eliminate genetic diseases at an increasingly earlier stage, even at an embryonic stage. However, the use of data obtained from testing may lead to discriminatory consequences. The purpose of this work is to analyze the degree of vulnerability of genetic data holders in the information society, in a context in which personal data are at the center of struggles for power. The increase in the economic value of information, combined with the ease of acquiring, maintaining and storing data, such as genetic data, makes a global debate on data protection, the potential for economic exploitation and the protection of its holders essential

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Publication Details

Journal
Revista de Direitos e Garantias Fundamentais
Published
2024-12-30
DOI
https://doi.org/10.18759/rdgf.v25i1.2539
Primary Topic
Law, AI, and Intellectual Property
Type
article
Field-Weighted Citation Impact
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article

The vulnerability of data genetics holders in the biotechnology revolution

Salete Oro Boff, Adriano Costa de Alcântara
Revista de Direitos e Garantias Fundamentais
Law, AI, and Intellectual Property
article

The vulnerability of data genetics holders in the biotechnology revolution

Salete Oro Boff, Adriano Costa de Alcântara
article en

Abstract

Technological advances in the genetic area arouse interest, as they make it possible to diagnose and eliminate genetic diseases at an increasingly earlier stage, even at an embryonic stage. However, the use of data obtained from testing may lead to discriminatory consequences. The purpose of this work is to analyze the degree of vulnerability of genetic data holders in the information society, in a context in which personal data are at the center of struggles for power. The increase in the economic value of information, combined with the ease of acquiring, maintaining and storing data, such as genetic data, makes a global debate on data protection, the potential for economic exploitation and the protection of its holders essential

Revista de Direitos e Garantias FundamentaisVol. 25(1)
Universidade do Vale do Rio dos Sinos (BR)
Reduced inequalities
Openalex Percentile: Top 78%
Law, AI, and Intellectual Property
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