Consent to recontact for future research using linked primary healthcare data: Outcomes and general practice perceptions from the ATHENA COVID-19 study
This report describes how primary care data were successfully extracted using consent, and that the majority of patients approached gave permission for their healthcare information to be used for research and be recontacted. The consent-to-recontact concept demonstrated its effectiveness to recruit to new research studies. The majority of general practices were willing to export identifiable patient healthcare data for linkage provided consent had been obtained.
Authors
- Maria Ximena Tolosa (ORCID: https://orcid.org/0000-0002-7775-0091)
- Tony Stanton (ORCID: https://orcid.org/0000-0001-7982-3170)
- Zoltan Bourne (ORCID: https://orcid.org/0009-0001-5304-8038)
- Rosemary Korda (ORCID: https://orcid.org/0000-0002-9390-2171)
- Kim Greaves (ORCID: https://orcid.org/0000-0002-5511-2486)
- Jennifer Welsh (ORCID: https://orcid.org/0000-0003-4415-5920)
- Mark Morgan (ORCID: https://orcid.org/0000-0001-7749-2427)
- Carissa Bonner (ORCID: https://orcid.org/0000-0002-4797-6460)
- Amanda King (ORCID: https://orcid.org/0000-0002-6070-4582)
- Trisha Johnston
Institutions
- Australian National University (AU)
- Bond University (AU)
- The University of Sydney (AU)
- Queensland Health (AU)
- Government of Western Australia Department of Health (AU)
- Sunshine Coast University Hospital (AU)
Publication Details
- Journal
- Clinical Trials
- Published
- 2024-12-29
- DOI
- https://doi.org/10.1177/17407745241304094
- Citations
- 1
- Primary Topic
- Ethics in Clinical Research
- Type
- article
- Field-Weighted Citation Impact
- 0.54
Funders
- Queensland Health