Engaging older adults in the process of aging research: a multimethod study evaluating the experience and efficacy of a citizen advisory group for a dementia risk reduction program
Findings suggest that collaborating with end-users in the process of aging research confers personal and scientific benefits for both older adults and researchers.
Authors
- Andrew Lim (ORCID: https://orcid.org/0000-0003-2179-1553)
- Danielle Laurin (ORCID: https://orcid.org/0000-0001-5032-2452)
- Anne‐Julie Tessier (ORCID: https://orcid.org/0000-0003-4551-1640)
- Alexandra Jasmine Fiocco (ORCID: https://orcid.org/0000-0002-9353-476X)
- Donald Fredric Weaver (ORCID: https://orcid.org/0000-0003-2042-6220)
- Haakon B. Nygaard (ORCID: https://orcid.org/0000-0001-5085-4723)
- Kenneth J. Rockwood (ORCID: https://orcid.org/0000-0002-6674-995X)
- Amal Trigui (ORCID: https://orcid.org/0009-0000-0993-6559)
- Sarah Best
- Bryn Robinson (ORCID: https://orcid.org/0000-0002-3031-5631)
- Linda Yetman
- Fatim Ajwani
- Pamela Jarrett (ORCID: https://orcid.org/0000-0003-1107-4614)
- Kelly J. Murphy (ORCID: https://orcid.org/0000-0002-3827-5814)
- Anas Alrohimi (ORCID: https://orcid.org/0000-0001-7601-6920)
- Stéphanie Yamin (ORCID: https://orcid.org/0000-0002-9702-314X)
- Kayla Regan (ORCID: https://orcid.org/0000-0002-1517-7592)
- Carolyn Revta
- Alan C. Evans (ORCID: https://orcid.org/0000-0003-3841-6098)
- Serge Gauthier
- Mark Speechley (ORCID: https://orcid.org/0000-0002-7563-8709)
- Lynn Valeyry Verty (ORCID: https://orcid.org/0000-0001-9199-8088)
- JoAnne McLaurin (ORCID: https://orcid.org/0000-0002-7428-9105)
- Joyla A. Furlano (ORCID: https://orcid.org/0000-0003-4098-8351)
- Avery Pratt
- Penelope Slack (ORCID: https://orcid.org/0000-0002-9147-6690)
- Eric Edward Smith (ORCID: https://orcid.org/0000-0003-3956-1668)
- Scott M. Hofer (ORCID: https://orcid.org/0000-0001-8923-4337)
- Samira Mehrabi (ORCID: https://orcid.org/0000-0001-7643-8971)
- Jennifer L. Campos (ORCID: https://orcid.org/0000-0002-7054-3946)
- Ryan S. Falck (ORCID: https://orcid.org/0000-0003-4224-3871)
- Gabrielle Aubin (ORCID: https://orcid.org/0000-0002-1675-5331)
- Alex Désautels (ORCID: https://orcid.org/0000-0002-2495-5675)
- Maude Bouchard
- Lauren Patricia Cole
- Hiroko H. Dodge (ORCID: https://orcid.org/0000-0001-7290-8307)
- Aline Moussard
- Jason E. Plaks (ORCID: https://orcid.org/0000-0003-2706-8067)
- Nicole D. Anderson (ORCID: https://orcid.org/0000-0002-5979-2220)
- Nellie Kamkar (ORCID: https://orcid.org/0000-0001-6001-8745)
- Paul Brewster (ORCID: https://orcid.org/0000-0002-8652-4141)
- January Durant (ORCID: https://orcid.org/0000-0002-6792-1539)
- Zia Mohades
- Aravind Ganesh (ORCID: https://orcid.org/0000-0001-5520-2070)
- A. Carol Evans
- Antonio Zadra (ORCID: https://orcid.org/0000-0003-3671-7081)
- Susan Marzolini (ORCID: https://orcid.org/0000-0002-3186-400X)
- Sylvie Belleville (ORCID: https://orcid.org/0000-0002-1046-1818)
- Nadia Gosselin (ORCID: https://orcid.org/0000-0002-3370-1634)
- Jacqueline Burt (ORCID: https://orcid.org/0000-0003-3528-8748)
- Jessica Callegaro
- Nicole Gervais (ORCID: https://orcid.org/0000-0003-2773-7830)
- Véronique Daneault (ORCID: https://orcid.org/0000-0002-8950-9043)
- L Moniz
- Munira Sultana (ORCID: https://orcid.org/0000-0002-3696-4122)
- Marie Y. Savundranayagam (ORCID: https://orcid.org/0000-0002-3911-1854)
- Chris Pauley
- Heather Keller (ORCID: https://orcid.org/0000-0001-7782-8103)
- Masoud Heshmati (ORCID: https://orcid.org/0000-0002-5486-5267)
- M. Kathleen Pichora‐Fuller (ORCID: https://orcid.org/0000-0002-7812-2863)
- Julia Truemner
- Caroline Desrosiers
- Sarah Banks
- Danielle Alcock
- Shubham Sharma
- Howard Feldman (ORCID: https://orcid.org/0000-0002-9258-4538)
- Roger Marple
- Laura Elizabeth Middleton (ORCID: https://orcid.org/0000-0001-8624-3123)
- Margaret Fahnestock (ORCID: https://orcid.org/0000-0002-6815-0529)
- Shirley Dumassais (ORCID: https://orcid.org/0009-0004-8912-8699)
- Catherine‐Alexandra Grégoire
- Quincy J. Almeida (ORCID: https://orcid.org/0000-0002-0806-4397)
- Krishnamurthi Mahalingam
- Helli Alkisti Raptis
- Julie C Carrier (ORCID: https://orcid.org/0000-0001-5311-2370)
- Emily Dwosh
- Thien Thanh Dang‐Vu (ORCID: https://orcid.org/0000-0002-7235-2721)
- Julie M. Robillard (ORCID: https://orcid.org/0000-0001-5765-4927)
- Catherine Hughes (ORCID: https://orcid.org/0000-0002-8825-6654)
- Stephanie Huang (ORCID: https://orcid.org/0000-0003-2466-9174)
- Diane M. Jacobs (ORCID: https://orcid.org/0000-0003-0886-6784)
- Brigitte Gilbert (ORCID: https://orcid.org/0000-0001-6720-0224)
- Tatiyana Mollayeva
- Lori Piquette
- Richard Camicioli (ORCID: https://orcid.org/0000-0003-2977-8660)
- Krista L. Lanctôt (ORCID: https://orcid.org/0000-0001-7024-6637)
- Rachel A. Crockett (ORCID: https://orcid.org/0000-0001-8580-948X)
- Walter Wittich (ORCID: https://orcid.org/0000-0003-2184-6139)
- Yanina Sarquis‐Adamson
- Marc Cuesta
- Andrew Centen
- Andrew Hamilton (ORCID: https://orcid.org/0000-0002-8436-8325)
- Jody‐Lynn Lupo (ORCID: https://orcid.org/0000-0002-9323-5727)
- Ging‐Yuek Robin Hsiung (ORCID: https://orcid.org/0000-0002-8017-0856)
- Raed A. Joundi (ORCID: https://orcid.org/0000-0001-9554-0701)
- Liisa A.M. Galea (ORCID: https://orcid.org/0000-0003-2874-9972)
- Manuel Montero‐Odasso (ORCID: https://orcid.org/0000-0002-5796-2361)
- Barry Greenberg (ORCID: https://orcid.org/0000-0002-6605-9385)
- Cheryl L. Wellington (ORCID: https://orcid.org/0000-0001-7014-039X)
- Paul Mick (ORCID: https://orcid.org/0000-0002-6468-2931)
- Dominique Lorrain (ORCID: https://orcid.org/0000-0003-4052-2527)
- Kylie Sullivan
- Sheetal Shajan
- Jennifer Walker (ORCID: https://orcid.org/0000-0003-0486-6568)
- Samir Das (ORCID: https://orcid.org/0000-0003-2018-8760)
- Michael Borrie
- Guangyong Zou (ORCID: https://orcid.org/0000-0001-5773-4185)
- Erwann Samson
- Geneviève Arsenault‐Lapierre (ORCID: https://orcid.org/0000-0003-0984-6857)
- Camille Beaudoin
- Thalia Shoshana Field (ORCID: https://orcid.org/0000-0002-1176-0633)
- Shawn Winer
- Caroline Duchaine (ORCID: https://orcid.org/0000-0002-9912-0349)
- Paul R. Territo (ORCID: https://orcid.org/0000-0003-0460-332X)
- Marie-Céline Lorenzini (ORCID: https://orcid.org/0000-0001-5019-5350)
- Karen Messer (ORCID: https://orcid.org/0000-0002-9298-2413)
- Korbin Blue
- Guylaine Ferland
- Chris A. McGibbon (ORCID: https://orcid.org/0000-0001-7849-7895)
- Inbal Itzhak
- Asif Butt (ORCID: https://orcid.org/0000-0003-2401-117X)
- Reanne Mundadan
- Fatima Tangkhpanya
- J. B. Orange (ORCID: https://orcid.org/0000-0002-2632-3049)
- Jennifer Bethell (ORCID: https://orcid.org/0000-0002-6141-9011)
- Kim Q. (ORCID: https://orcid.org/0000-0003-1968-1646)
- Gillian Einstein (ORCID: https://orcid.org/0000-0002-0770-5471)
- Tobias Herold (ORCID: https://orcid.org/0000-0002-9615-9432)
- Mark I. Boulos (ORCID: https://orcid.org/0000-0002-9547-1889)
- Larissa McKetton (ORCID: https://orcid.org/0000-0002-1065-7503)
- Howard Chertkow (ORCID: https://orcid.org/0000-0003-3749-8132)
- Danielle D’Amico (ORCID: https://orcid.org/0000-0001-5345-2711)
- Josée Haché
- Carol Thomas (ORCID: https://orcid.org/0000-0003-4188-9224)
- R. Vivian Acosta
- Maria Natasha Rajah
- Senny Chan
- Roger A. Dixon
- Jean‐François Gagnon (ORCID: https://orcid.org/0000-0002-8125-2925)
- Ron Postuma
- C. Gagnon
- S. Maltezos
- Amanda Wagner
- Jenna Sands
- Nathan Herrmann
- P. Soo
- Husaini Omar
- Aubrey Moore
- Natalie Phillips
- Teresa Liu‐Ambrose
- Louis Bherer
- Andrew Sexton
- Rose Biles
- Leigh-Anne M. Noltie
- Emilie Parolin
- Anne Julien-Rocheleau
- Talar Tcherkezian
- Rida Abou-Haider
- Charlie Henri-Bellamare
- Isabella Celotto
- Nada Elhayek
- Jason Haassenstab
- Mariam Sidrak
- Alison ChasteenHoward Chertkow
- Tatiana Harold
- Elizaveta Klekovkina
- Brooklyn Mankasingh
Institutions
- Western University (CA)
- Allen Institute for Brain Science (US)
- University of Toronto (CA)
- Sinai Hospital (US)
- Baycrest Hospital (CA)
- Canadian Apheresis Group (CA)
- Quebec - Clinical Research Organization in Cancer (CA)
- Consortium canadien en neurodégénérescence associée au vieillissement
Publication Details
- Journal
- Research Involvement and Engagement
- Published
- 2024-12-27
- DOI
- https://doi.org/10.1186/s40900-024-00643-6
- Citations
- 4
- Primary Topic
- Mental Health and Patient Involvement
- Type
- article
- Field-Weighted Citation Impact
- 3.40
Funders
- Consortium canadien en neurodégénérescence associée au vieillissement
- Canadian Institutes of Health Research