Development of cohort definitions and algorithms to identify patients with Lennox-Gastaut syndrome or Dravet syndrome from real-world administrative healthcare databases
To our knowledge, this is the first study to comprehensively develop country-specific definitions and algorithms for LGS and DS across several countries that provide a solid foundation toward identifying such patients from real-world retrospective databases. However, additional research and validation using real-world data sources are warranted.
Authors
- Drishti Shah (ORCID: https://orcid.org/0000-0002-5866-7743)
- Arturo Benitez (ORCID: https://orcid.org/0000-0001-6023-9871)
- Jeannine Roth
- Victoria Divino (ORCID: https://orcid.org/0000-0001-5555-7912)
- Justin Chen (ORCID: https://orcid.org/0000-0003-4924-106X)
- J. Scott Andrews (ORCID: https://orcid.org/0009-0001-5516-7719)
Institutions
- Inova Fairfax Hospital (US)
- Takeda (Switzerland) (CH)
- Takeda (United States) (US)
Publication Details
- Journal
- Heliyon
- Published
- 2024-12-25
- DOI
- https://doi.org/10.1016/j.heliyon.2024.e41486
- Citations
- 1
- Primary Topic
- Epilepsy research and treatment
- Type
- article
- Field-Weighted Citation Impact
- 0.39