Identifying meaningful aspects of health and concepts of interest for assessment in systemic lupus erythematosus: implications for digital clinical measure development
We identified DCMs for physical behavior and sleep that are relevant and meaningful to patients with SLE, measurable in a real-world environment with wearable sensors, and have the potential to aid personalized patient care.
Authors
- Joy Buie (ORCID: https://orcid.org/0000-0003-4026-4812)
- Kate Lyden (ORCID: https://orcid.org/0000-0002-3343-9007)
- Paul Kamudoni (ORCID: https://orcid.org/0000-0002-4669-0647)
- Erik R. Thomas (ORCID: https://orcid.org/0000-0002-8737-4819)
- Oliver Günther (ORCID: https://orcid.org/0000-0002-0079-0423)
- Erica Spies (ORCID: https://orcid.org/0009-0008-2006-9933)
- T. Araújo (ORCID: https://orcid.org/0000-0003-0027-2455)
- Laurent Arnaud (ORCID: https://orcid.org/0000-0002-8077-8394)
- Jennifer M. Blankenship (ORCID: https://orcid.org/0000-0002-8052-2516)
- Josephine Park (ORCID: https://orcid.org/0009-0000-5270-1835)
- Vikas Jaitely
Institutions
- Inserm (FR)
- Merck KGaA, Darmstadt (Germany) (DE)
- Lupus Foundation of America (US)
- Ono Pharmaceutical (United States) (US)
- Hôpitaux Universitaires de Strasbourg (FR)
Publication Details
- Journal
- Journal of Patient-Reported Outcomes
- Published
- 2024-12-24
- DOI
- https://doi.org/10.1186/s41687-024-00832-7
- Citations
- 2
- Primary Topic
- Systemic Lupus Erythematosus Research
- Type
- article
- Field-Weighted Citation Impact
- 0.94
Funders
- Merck KGaA