Conducting ethical, co-produced research with autistic individuals with an eating disorder: best practice guidelines
There is a notable overlap between autism and eating disorders (EDs), and autistic individuals may experience poorer ED treatment outcomes than non-autistic peers. To make meaningful change in this field, it is imperative that we actively engage in co-production of research, however there are currently no guidelines to support co-production with autistic people with eating disorders. This paper reports on best practice guidelines that were co-produced across a series of workshops bringing together autistic people with EDs, researchers, clinicians, third-sector organisations, and parents/carers. The guidelines are intended to be used as a foundation for future co-produced autism and ED research. By creating a trusted, ethical co-production relationship, we hope to generate more clinically meaningful and translatable research.
Authors
- Kate Tchanturia
- Karri Gillespie‐Smith (ORCID: https://orcid.org/0000-0002-3059-7632)
- Jessica Bragg
- Fiona Duffy (ORCID: https://orcid.org/0000-0002-9162-9722)
- Jess Kerr‐Gaffney (ORCID: https://orcid.org/0000-0001-5834-8307)
- Ken MacDonald
- Michelle Sader (ORCID: https://orcid.org/0000-0002-8068-7337)
- Emy Nimbley (ORCID: https://orcid.org/0000-0002-5888-1555)
- Joseph D. Long (ORCID: https://orcid.org/0000-0003-1905-9443)
- Julie-Anne Baker
- Ellen Maloney (ORCID: https://orcid.org/0009-0004-2206-0909)
- Gordon D. Waiter (ORCID: https://orcid.org/0000-0002-5313-9845)
- Sarah Kettley (ORCID: https://orcid.org/0000-0001-7274-2175)
- Isla Whateley
- Helen Sharpe (ORCID: https://orcid.org/0000-0001-6980-1699)
- Kyle Buchan
- Tasha Suratwala
- Laura A. Campbell (ORCID: https://orcid.org/0009-0005-3543-0523)
- Alison Shepherd
- Ollie Booth
- Nix Renton
- Emily Nuttal
- Harriet Darling
- Lin Fidgin
- Casper Temple
- Sammi Carden
- Bryanna Lazich
- Becky Choat
Institutions
- NHS Lothian (GB)
- King's College - North Carolina (US)
- King's College London (GB)
- University of Aberdeen (GB)
- Royal Edinburgh Hospital (GB)
- Edinburgh College (GB)
- Thomas Swan (United Kingdom) (GB)
- University of Edinburgh (GB)
Publication Details
- Journal
- Eating Disorders
- Published
- 2024-12-21
- DOI
- https://doi.org/10.1080/10640266.2024.2441540
- Citations
- 5
- Primary Topic
- Autism Spectrum Disorder Research
- Type
- article
- Field-Weighted Citation Impact
- 1.71
Funders
- UK Research and Innovation
- National Institute for Health and Care Research
- Medical Research Council
- Medical Research Foundation