Cognitive impairment in Huntington's disease and its impact on functioning: Concept elicitation and cognitive debriefing for the Huntington's Disease Everyday Functioning (Hi-DEF) scale
These interviews revealed the impact of HD-related cognitive impairment on everyday functioning and supported the content validity, relevance, clarity, interpretation, and acceptability of the Hi-DEF scale.
Authors
- Jason Johannesen (ORCID: https://orcid.org/0000-0002-7049-4873)
- Jennifer Petrillo
- Stefan Cano (ORCID: https://orcid.org/0000-0001-9390-273X)
- A. Alex Levine (ORCID: https://orcid.org/0000-0002-1336-3594)
- Alissa R. Rams (ORCID: https://orcid.org/0000-0001-9615-4546)
- Aaron Koenig
- Jennifer Klapper
- Karen Elta Anderson (ORCID: https://orcid.org/0000-0002-2084-6869)
- T Lovell
Institutions
- Georgetown University (US)
- Huntington University (US)
- Health Outcomes Solutions (United States) (US)
- Sage Therapeutics (United States) (US)
- University of Pennsylvania (US)
Publication Details
- Journal
- Journal of Huntington s Disease
- Published
- 2024-10-23
- DOI
- https://doi.org/10.1177/18796397241289044
- Citations
- 5
- Primary Topic
- Genetic Neurodegenerative Diseases
- Type
- article
- Field-Weighted Citation Impact
- 1.34
Funders
- Sage Therapeutics