Community Collaboration in Public Health Genetic Literacy: Methods for Co-Designing Educational Resources for Equitable Genomics Research and Practice
This article offers an evidence-based template for adoption or adaptation by other community-engaged groups, aimed at bolstering equity and sustainability in the development of health care interventions and with an emphasis on accessible public health literacy. The co-creation by researchers and community members of both materials and dissemination plans may improve the cultural appropriateness and relevance of public health genetics campaigns. Ongoing research is needed to assess the impact of this approach on receptiveness and participation.
Authors
- Bradford C. Powell (ORCID: https://orcid.org/0000-0002-2842-8645)
- Laura V. Milko (ORCID: https://orcid.org/0000-0002-8060-9013)
- Samantha Schilling (ORCID: https://orcid.org/0000-0002-0551-3089)
- Andreas K. Orphanides
- Jonathan S. Berg (ORCID: https://orcid.org/0000-0003-2360-2664)
- Kimberly Foss (ORCID: https://orcid.org/0000-0003-3996-7895)
- Juhi Salunke
- J. Daniel
- Margaret Waltz (ORCID: https://orcid.org/0000-0002-2582-145X)
- Sabrina N. Powell (ORCID: https://orcid.org/0000-0002-0394-6972)
- Megan C. Roberts (ORCID: https://orcid.org/0000-0003-3434-2773)
- Grace Byfield
- Ann Katherine M. Foreman (ORCID: https://orcid.org/0000-0002-0293-6609)
- Thomas Owens (ORCID: https://orcid.org/0000-0002-6673-3413)
- Nicole Shaw (ORCID: https://orcid.org/0000-0002-2491-1883)
- Jahnelle Jackson
- Lennin Caro
- Stefanija Giric
- Grace Leon-Lozano
- Daniel Torres (ORCID: https://orcid.org/0000-0002-9765-5876)
- Carla Robinson
- Elizabeth Branch
- Ken Ray
- Erin Song
- Jonathan L. Shaw
Institutions
- University of North Carolina at Chapel Hill (US)
- University of North Carolina Health Care (US)
- North Carolina State University (US)
- University of North Carolina at Greensboro (US)
Publication Details
- Journal
- Public Health Genomics
- Published
- 2024-12-19
- DOI
- https://doi.org/10.1159/000543227
- Citations
- 1
- Primary Topic
- BRCA gene mutations in cancer
- Type
- article
- Field-Weighted Citation Impact
- 0.55
Funders
- National Institutes of Health
- National Human Genome Research Institute
- National Center for Advancing Translational Sciences