The use of patient-generated health data in the management of low anterior resection syndrome: a qualitative study
This study highlights many gaps in the processes of patient-generated LARS data collection and review. A clinical tool including various data collection templates and data visualization prototypes could help to address these gaps. Future research will focus on incorporating the patient perspective.
Authors
- Lieba R. Savitt
- Margit Majgaard
- Natalie Leon (ORCID: https://orcid.org/0000-0001-9392-3426)
- Peter Christensen (ORCID: https://orcid.org/0000-0002-0046-5727)
- Julie Savard
- Liliana Bordeianou (ORCID: https://orcid.org/0000-0003-3418-6774)
- Marcos Mills (ORCID: https://orcid.org/0000-0001-8183-6720)
- Marylise Boutros (ORCID: https://orcid.org/0000-0001-8006-321X)
- Celia Keane (ORCID: https://orcid.org/0000-0002-9611-2335)
- Alessandra C. Gasior (ORCID: https://orcid.org/0000-0001-8280-1378)
- Gitte Kjær Sørensen
- Julie Cornish (ORCID: https://orcid.org/0000-0003-4360-4472)
- Marie Demian
- Olivia Monton
- S. D. Wexner
- Syed Husain
- Allister Smith
- Sarah Sabboobeh
- Fateme Rajabiyazdi
- Amandeep Ghuman
Institutions
- Western University (CA)
- Cardiff and Vale University Health Board (GB)
- Nationwide Children's Hospital (US)
- Harvard University (US)
- Johns Hopkins University (US)
- University of Auckland (NZ)
- St. Paul's Hospital (CA)
- Jewish General Hospital (CA)
- Aarhus University Hospital (DK)
- The Ohio State University Wexner Medical Center (US)
- Massachusetts General Hospital (US)
- Northland District Health Board (NZ)
- Cleveland Clinic Florida (US)
- Danish Cancer Society (DK)
- McGill University (CA)
- The Ohio State University (US)
- Carleton University (CA)
- Cardiff University (GB)
- McMaster University (CA)
Publication Details
- Journal
- Frontiers in Surgery
- Published
- 2024-12-19
- DOI
- https://doi.org/10.3389/fsurg.2024.1506688
- Primary Topic
- Cancer survivorship and care
- Type
- article
- Field-Weighted Citation Impact
- 0.00