Lived experiences of patients with epidermolysis bullosa: A rare genetic skin disease
To our knowledge, this is the first study in Africa focused on the lived experiences of patients with EB. This highlights the physical, psychosocial and financial challenges that patients with rare diseases encounter in our local setting.
Authors
- Ncoza Cordelia Dlova (ORCID: https://orcid.org/0000-0002-2425-3905)
- David Blackbeard (ORCID: https://orcid.org/0000-0001-5609-9343)
- Colleen Aldous (ORCID: https://orcid.org/0000-0002-7199-9160)
- Antoinette Chateau (ORCID: https://orcid.org/0000-0001-9825-6191)
- Cassidy-Mae Shaw (ORCID: https://orcid.org/0000-0002-4291-1641)
Institutions
- Grey's Hospital (ZA)
- University of KwaZulu-Natal (ZA)
Publication Details
- Journal
- Health SA Gesondheid
- Published
- 2024-12-16
- DOI
- https://doi.org/10.4102/hsag.v29i0.2824
- Citations
- 2
- Primary Topic
- Skin and Cellular Biology Research
- Type
- article
- Field-Weighted Citation Impact
- 0.65