Participatory longitudinal qualitative interview study to understand Autistic gynaecological and obstetric health: the Autism from menstruation to menopause study protocol
We are an Autistic-led team that adopts a social model of disability. However, this study raises ethical issues relating to sensitive topics and marginalised populations. Accordingly, we have robust procedures in place to assess capacity to ensure informed consent and to allow participants to take part without opting into data sharing. Ethical approval has been awarded by the Swansea University School of Health and Social Care Research Ethics Committee. We will publish our findings as open access articles in peer-reviewed journals.
Authors
- Amy Brown (ORCID: https://orcid.org/0000-0002-0438-0157)
- Heejeong Lim (ORCID: https://orcid.org/0009-0000-3900-4656)
- Helen Kara (ORCID: https://orcid.org/0000-0001-7348-0963)
- Kathryn Williams (ORCID: https://orcid.org/0000-0001-7274-3493)
- Rebecca Ellis (ORCID: https://orcid.org/0000-0002-7761-468X)
- Amanda Wilkins
- Harriet Axbey (ORCID: https://orcid.org/0000-0002-1782-3930)
- Gemma Williams (ORCID: https://orcid.org/0000-0002-5162-0440)
- Willow Holloway
- Aimee Grant (ORCID: https://orcid.org/0000-0001-7205-5869)
- Helen Cave
- Christina Nicolaidis (ORCID: https://orcid.org/0000-0002-9394-5956)
- Ellen Firth
- Selena Caemawr
- Monique Craine
- Madeleine Sinfield
- Kay Ribbons
Institutions
- Portland State University (US)
- Swansea University (GB)
- Staffordshire County Council (GB)
- Cardiff University (GB)
Publication Details
- Journal
- BMJ Open
- Published
- 2024-12-01
- DOI
- https://doi.org/10.1136/bmjopen-2024-088343
- Citations
- 1
- Primary Topic
- Disability Rights and Representation
- Type
- article
- Field-Weighted Citation Impact
- 0.53
Funders
- Wellcome Trust
- Swansea University