Ownership of genomic data

This article considers claims to ownership over genomic data and implications for data sharing and research. There are various arguments for vesting ownership in individuals, but little supporting authority. However, policies such as privacy law and informed consent provide alternative methods of protecting individuals. The conclusions highlight the importance of clear channels of communication with patients.

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Publication Details

Journal
Internal Medicine Journal
Published
2024-12-13
DOI
https://doi.org/10.1111/imj.16573
Primary Topic
Ethics in Clinical Research
Type
article
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article

Ownership of genomic data

Jane L Nielsen, Carolyn Johnston
Internal Medicine Journal
Ethics in Clinical Research
article

Ownership of genomic data

Jane L Nielsen, Carolyn Johnston
article en

Abstract

This article considers claims to ownership over genomic data and implications for data sharing and research. There are various arguments for vesting ownership in individuals, but little supporting authority. However, policies such as privacy law and informed consent provide alternative methods of protecting individuals. The conclusions highlight the importance of clear channels of communication with patients.

Internal Medicine JournalVol. 55(2)
University of Tasmania (AU)
Peace, Justice and strong institutions
Openalex Percentile: Top 65%
Ethics in Clinical Research
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Ownership of genomic data — Jane L Nielsen, Carolyn Johnston · Internal Medicine Journal (2024) | TGRS Research Map | TGRS