Ownership of genomic data
This article considers claims to ownership over genomic data and implications for data sharing and research. There are various arguments for vesting ownership in individuals, but little supporting authority. However, policies such as privacy law and informed consent provide alternative methods of protecting individuals. The conclusions highlight the importance of clear channels of communication with patients.
Authors
- Jane L Nielsen (ORCID: https://orcid.org/0000-0002-3005-0047)
- Carolyn Johnston (ORCID: https://orcid.org/0000-0002-7910-5117)
Institutions
- University of Tasmania (AU)
Publication Details
- Journal
- Internal Medicine Journal
- Published
- 2024-12-13
- DOI
- https://doi.org/10.1111/imj.16573
- Primary Topic
- Ethics in Clinical Research
- Type
- article
- Field-Weighted Citation Impact
- 0.00